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Obsessions and surgery

kieransm mam

Hi there.  I'm new to this so if I ramble I apologise.  My son Kieran is 12, he has many disabilities, CP,Hydrocephalus, Autism, ADHD and Epilepsy. He has had obsessions before, convinced he's got a mucky bum all the time, picking spots he creates himself, clothes....but now he's sticking his fingers down his throat to make himself sick.  He says something is there, there is nothing to see.  He is doing this all the time, on top of his constant bathroom visits to clean himself, (though nothing is there), I'm losing my mind, I cannot magine what his hea must be like.  He is due to have major surgey in a month, I have a care co-ordinator who is doing nothing (CAMHS) I have messaged her 4 times this week, not one reply, she has't seen Kieran except once in over a year, we cannot get any help at all.  They were supposed to be giving something to calm the bairn in hospital, but his psychiatrist went on maternity, now the new one says he won't because of the Epilespy, but no-one can tell me who to contact.  I'm about to sack CAMHS tomorrow, I'm very lucky the school has a great Autism specialist, but I'm terrifed about how the bairn will cope in hospital,he could really harm himself, if infection sets in it will be straight into his bones as he's having the whole of his left leg from the hip broken and re-aligned.  I'm so sorry for ranting, but I need to say this out loud, I'm breaking in two :(

Parents

  • Hun,

    Don't ever feel bad about ranting here. This should be a safe haven for anyone with our level of demands, to vent all they like. My sense though is that you (Like many) are being very hard on yourself. You are doing a great job, be kind to yourself. Doing your best is all you can do, non of us are super human.

    Their us usually someone here to help or put forward some great ideas.

    Re other issues. Try the simplest first. (Make sure of course that you don't have any contraindications with current meds though.

    Re evacuation, I'm told that that too can be sensory. Worth observing i think that many conditions overlap and although this image is by no means exhaustive it shows many of the conditions that are co-occuring.

    www.facebook.com/.../

    Try the powder using positive reinforcement. (This will make it more coMfortable!) and see how you get on. Chances are if he feels dryer it will be more comfortable and reduce his need to clean so often.

    Do research sensory issues if you have not already done so.

    Good luck

    Coogybear

Reply

  • Hun,

    Don't ever feel bad about ranting here. This should be a safe haven for anyone with our level of demands, to vent all they like. My sense though is that you (Like many) are being very hard on yourself. You are doing a great job, be kind to yourself. Doing your best is all you can do, non of us are super human.

    Their us usually someone here to help or put forward some great ideas.

    Re other issues. Try the simplest first. (Make sure of course that you don't have any contraindications with current meds though.

    Re evacuation, I'm told that that too can be sensory. Worth observing i think that many conditions overlap and although this image is by no means exhaustive it shows many of the conditions that are co-occuring.

    www.facebook.com/.../

    Try the powder using positive reinforcement. (This will make it more coMfortable!) and see how you get on. Chances are if he feels dryer it will be more comfortable and reduce his need to clean so often.

    Do research sensory issues if you have not already done so.

    Good luck

    Coogybear

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