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Obsessions and surgery

kieransm mam

Hi there.  I'm new to this so if I ramble I apologise.  My son Kieran is 12, he has many disabilities, CP,Hydrocephalus, Autism, ADHD and Epilepsy. He has had obsessions before, convinced he's got a mucky bum all the time, picking spots he creates himself, clothes....but now he's sticking his fingers down his throat to make himself sick.  He says something is there, there is nothing to see.  He is doing this all the time, on top of his constant bathroom visits to clean himself, (though nothing is there), I'm losing my mind, I cannot magine what his hea must be like.  He is due to have major surgey in a month, I have a care co-ordinator who is doing nothing (CAMHS) I have messaged her 4 times this week, not one reply, she has't seen Kieran except once in over a year, we cannot get any help at all.  They were supposed to be giving something to calm the bairn in hospital, but his psychiatrist went on maternity, now the new one says he won't because of the Epilespy, but no-one can tell me who to contact.  I'm about to sack CAMHS tomorrow, I'm very lucky the school has a great Autism specialist, but I'm terrifed about how the bairn will cope in hospital,he could really harm himself, if infection sets in it will be straight into his bones as he's having the whole of his left leg from the hip broken and re-aligned.  I'm so sorry for ranting, but I need to say this out loud, I'm breaking in two :(

Parents

  • Thank you both so much for your replies :)

    I have mentioned to his consultant over the past year his need to feel clean, she has not mentioed worms, but maybe I could ask her on Wednesday, I had considered "piles" as he has Cerebral Palsy so his functions down there can be difficult due to muscle weakness, he also stops himself from going to the toilet properly, maybe because he doesn't like it much.

    Believe it or not, Kieran was only diagnosed at age 10, though his school said age 4 he was Autistic.  His Epilepsy became quite bad for a while but since the meds were balanced the Autism seems to be rearing it's head, worse as he gets older, I wonder if this is common, or the Epilepsy was masking it some how.

    I am trying to be positive in my abilities.  I'm one of these that can talk well in meetings, then fall apart at home when I try to make things happen. Also, when I get no-where with services I feel I'm not good enough, we give ourselves a battering don't we.

    I'm more worried about the hospital situation, just because the only stories you hear hear are negative, I have already tried to put in place a side room, as during other surgeries Kieran has bailed quite badly.  Last time he got a side room, the difference at being able to limit the people visable and to dim the lights was marked, fingers crossed I can sort this out as well. His care co-ordinator was supposed to sort desensitisation out for him, that's when she went quiet.  I too like most of the people at CAMHS, I am forever telling people that I understand they're busy and over stretched, but sometimes I just get tired of seeing certain people getting everything and others nothing, maybe I do need to shout more lol

     About a year ago Kieran started harming himself, he had always lashed out at us, but seeing him do this to himself was terrifying. I begged to be seen...they put us in a drug clinic by mistake, never did get another appointment.  The staff are ever-changing :(

    Wow! I am so sorry for all the ranting :/ I do try and stay on top of things, maybe also I ignore things in the hope they will resolve, but lately I just feel I'm sinking a bit.

    Thank you so much for all your help and support, you have really done so much for me over night :) xxx

Reply

  • Thank you both so much for your replies :)

    I have mentioned to his consultant over the past year his need to feel clean, she has not mentioed worms, but maybe I could ask her on Wednesday, I had considered "piles" as he has Cerebral Palsy so his functions down there can be difficult due to muscle weakness, he also stops himself from going to the toilet properly, maybe because he doesn't like it much.

    Believe it or not, Kieran was only diagnosed at age 10, though his school said age 4 he was Autistic.  His Epilepsy became quite bad for a while but since the meds were balanced the Autism seems to be rearing it's head, worse as he gets older, I wonder if this is common, or the Epilepsy was masking it some how.

    I am trying to be positive in my abilities.  I'm one of these that can talk well in meetings, then fall apart at home when I try to make things happen. Also, when I get no-where with services I feel I'm not good enough, we give ourselves a battering don't we.

    I'm more worried about the hospital situation, just because the only stories you hear hear are negative, I have already tried to put in place a side room, as during other surgeries Kieran has bailed quite badly.  Last time he got a side room, the difference at being able to limit the people visable and to dim the lights was marked, fingers crossed I can sort this out as well. His care co-ordinator was supposed to sort desensitisation out for him, that's when she went quiet.  I too like most of the people at CAMHS, I am forever telling people that I understand they're busy and over stretched, but sometimes I just get tired of seeing certain people getting everything and others nothing, maybe I do need to shout more lol

     About a year ago Kieran started harming himself, he had always lashed out at us, but seeing him do this to himself was terrifying. I begged to be seen...they put us in a drug clinic by mistake, never did get another appointment.  The staff are ever-changing :(

    Wow! I am so sorry for all the ranting :/ I do try and stay on top of things, maybe also I ignore things in the hope they will resolve, but lately I just feel I'm sinking a bit.

    Thank you so much for all your help and support, you have really done so much for me over night :) xxx

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