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Obsessions and surgery

kieransm mam

Hi there.  I'm new to this so if I ramble I apologise.  My son Kieran is 12, he has many disabilities, CP,Hydrocephalus, Autism, ADHD and Epilepsy. He has had obsessions before, convinced he's got a mucky bum all the time, picking spots he creates himself, clothes....but now he's sticking his fingers down his throat to make himself sick.  He says something is there, there is nothing to see.  He is doing this all the time, on top of his constant bathroom visits to clean himself, (though nothing is there), I'm losing my mind, I cannot magine what his hea must be like.  He is due to have major surgey in a month, I have a care co-ordinator who is doing nothing (CAMHS) I have messaged her 4 times this week, not one reply, she has't seen Kieran except once in over a year, we cannot get any help at all.  They were supposed to be giving something to calm the bairn in hospital, but his psychiatrist went on maternity, now the new one says he won't because of the Epilespy, but no-one can tell me who to contact.  I'm about to sack CAMHS tomorrow, I'm very lucky the school has a great Autism specialist, but I'm terrifed about how the bairn will cope in hospital,he could really harm himself, if infection sets in it will be straight into his bones as he's having the whole of his left leg from the hip broken and re-aligned.  I'm so sorry for ranting, but I need to say this out loud, I'm breaking in two :(

Parents

  • Hi there, thank you so much for your reply Smile

    I thought that too about his throat.  I have in the past suffered with panic attacks and anxiety, I know well the feeing of the lump in throat, it's scary for sure.  We're seeing his consultant on Wednesday so I'm going to mention it to her.

     I'm just so frustrated with the services at the moment.  I follow a very polite route with everyone, service wise, but lately I'm getting tired of being so polite.  I feel CAMHS is in a mess, no-one knows who to refer to, then when you do get referrals you have to wait so long for help you have usually figured out a coping strategy, or you're past breaking point. Can you believe his Psychatrist said he was dealing with the ADHD, but would have to refer us on to a behavioural specialist for the obsessions.  I know they specialise, but surely a few tips isn't too much to ask for.

    Thanks you again for your reply, I will certaily look into the community help available and read up on the links you mention.  I hope you're all well :D xxx

Reply

  • Hi there, thank you so much for your reply Smile

    I thought that too about his throat.  I have in the past suffered with panic attacks and anxiety, I know well the feeing of the lump in throat, it's scary for sure.  We're seeing his consultant on Wednesday so I'm going to mention it to her.

     I'm just so frustrated with the services at the moment.  I follow a very polite route with everyone, service wise, but lately I'm getting tired of being so polite.  I feel CAMHS is in a mess, no-one knows who to refer to, then when you do get referrals you have to wait so long for help you have usually figured out a coping strategy, or you're past breaking point. Can you believe his Psychatrist said he was dealing with the ADHD, but would have to refer us on to a behavioural specialist for the obsessions.  I know they specialise, but surely a few tips isn't too much to ask for.

    Thanks you again for your reply, I will certaily look into the community help available and read up on the links you mention.  I hope you're all well :D xxx

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