Hi there, i am new to the forum.
My 3 year old daughter was diagosed with ASD on Monday.
Although i kind of knew, it still came as a bit of a shock. We think she may
also have some sensory issues, so we are looking at investigating this.
Would be nice to meet parents in a similar situation.
:)
Hey,
No worries. I just typed a massive reply, but it got wiped because i forgot to sign in. Doh.
So sorry to hear things havent been great for you. Also sorry to hear that your husband has lost his job. What a nightmare. It never rains, but it pours huh. Aww, yes i totally get that, i wouldnt like to not be able to go to any appointments. Does your son have a portage worker you can talk to? Or maybe a health visitor might be of some use? joining a group would probably be a good idea, but i do get what you mean. Im also not great with that sort of thing. I have decided to make myself go to this group on friday. It is an ASD support group that runs once a month. My little one will be at nursery, so will have to go on my own, if i dont chicken out like i have done for the last few months. I do think, if you can find one that can fit around you, it can only be a help being around other parents in a similar situation. Glad to hear you have found a good book and you're finding it helpful. It is definitley a work in progress.
Well, i gave myself a mental slap. i just keep going into a panic with 'what if's?'. So i have been reading about the sensory side of things and think my little one defo has some sensory issues. If i can find a way to try to help lessen or manage some of her traits, surely it will make her life a bit easier? If it even works. I spoke to a therapist and we have an appointment in a couple of weeks.
I hope that you are ok. Sorry i am not of much help with advice and stuff. Dont know if we are allowed to swap email addresses on here, but heres mine if you want to chat privately tinkermelll@hotmail.com Hope this week is a better one for you.
Hello Melbel,
For some reason I didn't get the notification of your message so didnot realise you had sent a message. Sorry. My week hasn't been that great, I'm feeling pretty stressed out. My husband lost his job this week too which doesn't help. My son also has a few appointmenta this week and asking for time as I said before is hard. My husband can go to some but I don't know as a mother there is just some I prefer to be at myself. I feel like I want to talk about things but not really sure who are the best people to talk to I'm thinking of maybe joining a group but I'm not so good at doing things like that and once again it's finding time around work life and school life. Just a bit tired of life in general at the moment it always seemed to be something. I Have started to read one of the books I have bought and it's nice to read things from other peoples perspective and also know that you are not the only one that has been through certain things even though I can't say it makes me feel any better but I guess it's all a work in progress.
Sorry about the doom and gloom. How has your week been? Better than mine I hope.
Hi,
Its hard isnt it. i have known for quite a while that something wasn't quite right with our daughter. I was also holdng out hope that it was maybe a development delay or something like that, but i think deep down i knew. That said, i burst into tears when the paediatrician told us her diagnosis. The brochure Shine recommended is really good.
Hi,
I'm also new to the forum. We received a diagnosis of autism four weeks ago for my four year old son and I think to some extent I have my head in the sand over it all. I have known for awhile, but you always hold out that hope that it is something else, or that he will snap out of it. I'll look at the brochure also thanks.
It must be totally exhausting working full time and having two little ones. I dont think i could manage and i only have one child! My boss made it very easy for me to reach the decision of quitting when my daughter was very young. My partner and i don't have any family support, so on the very few occasions that my daughter was unwell at nursery, i would have to leave work to take her home. So, i have been a full time mum since my daughter was 11 months old. My partner works full time. While i do feel blessed to be in this position, it doesnt come without its struggles. Not least financially. My partner works long hours and often we will both be asleep by the time he comes home - i often feel very alone in caring and managing our daughter, especially if it has been a day of meltdowns or other challenging behaviours. I want to say to you, try to not feel guilty, because you are doing the best that you can - but i know that you can't help the way you feel. The booklet was really helpful, loads of useful information. Thank you. I hope The Reason I Jump is just as helpful to you.
When u say it's hard not to be hard on yourself. I totally get that. At the moment I'm working but I'm fighting with myself because I'm wondering whether I give up work and concentrate on my children because my 2nd child also has special needs. I feel guilty because I feel that they should be getting more from me which I can't seem to give while working full time and trying to manage the behaviour of the 2. Also trying to get time off for appointments and things isn't always easy. I hope you find the booklet helpful. I have ordered the book that you recommended, as you said, hopefully it will give me a better insight into the way he feels.
Hiya!
Welcome to the Community. Hope you find it useful! We also have lots of parent resources on our site.
Take care,
Avi
Moderator
It is very difficult to not be hard on yourself - at least that is what i am finding. Although i have read this isn't because of anything i may or may not have done. No, i wasn't told about the booklet - i have just downloaded it - thank you. I will read that shortly. The Reason I Jump - i admit, some parts made me cry, but it gave me a better understanding of why my daughter does the things she does. Her reasons may not be the same as this little boy, but it made alot of sense. I borrowed it from our local library. Thankyou for telling me about the booklet.
I've been told it's natural to be up and down and I've been told and read that we shouldn't be so hard on ourselves... Sometimes things are easier said than done but it's going to take time to process it's all still very new to us. One of the ladies in the team surrounding my son told me to read this booklet you may have read it already... If u google... early support autism disorder spectrum, I found it useful and informative. I may give that book you mentioned a try. My books haven't arrived yet but they were on the reading list at the end of the booklet and then I read reviews on amazon to see if other people actually found them useful but they are more help for parents and other parents perspective, it would be good to read something from a young boys perspective because that's all that's been going around in my head I may be finding all of this difficult but what must it be like for my son.
Same here. I have googled, but not much - it became too confusing. I have found the information on here helpful. The team around my daughter haven't made any website suggestions - i should have asked at Monday's MDA, but was too stunned. One book i have read, which i found incredible was, The Reason I Jump. It is from the little boy's perspective, and i found it to be a real eye opener. I am still quite up and down. Have decided that tomorrow i will kick myself up the backside and get on with it. Thats the plan anyway.
Yep. I don't know a lot about Austism so have been trying to read up but have been given trusted websites by the professionals involved and told not to google it. I have read a little bit now and have also ordered some books, I'm hoping with time I will stop feeling overwhelmed and all the rest of it. I kept reading that it helps to talk to other parents that are going through the same thing so that is why I joined this community.
Hi Melbel,
I am new to the forum also.
My 2year old son was diagnosed with ASD last week. So it's all rather new to me also, I'm glad that he now has a diagnosis and an early one at that so now things can be put in place for him but I am finding everything a bit overwhelming at the moment.
