Hi all,
I'm new to the site and this is my 1st post. I am James' Mummy. James is 2 yrs 9 months and was diagnosed with ASD in Jan 2011. James was also born with a bilateral cleft lip and palate (now repaired through 2 surgeries in his 1st year). It is difficult to say how severe james' ASD is as he is so young, however, he doesn't talk at all, I find it difficult to keep his attention for more that 2-5 mins and he is not yet potty trained. I could say much more about his ASD but I hope this enough info to answer my specific questions..............
I have a question about the law and also some advice on how I should treat an issue.
James attends a private nursery 9-3 Mon, Tue wed, they are great with James (he loves it at this nursery) they are really willing to get involved and we have 4 weekly meetings about James' development they are starting PECS and storey boards with James too. The issue is about 1-2-1 funding as it is a private nursery and prep school up to the age of 8, the school are saying they will try but are unlikey to be able to get free 1-2-1 tuition for him as it is a private school. As I am a single parent I cannot afford private 1-2-1 tuition for James, it is tough enough paying the fees as they are but I am happy to do so because the nursey are so good and understanding with James.
Because of the issues of 1-2-1 funding, I have recently enrolled James at a nursery affiliated with a state school for just 2 hrs a week on a thursday afternoon; this nursery have been really good about pushing 1-2-1 support for James, the issue is that as it is a pre-school nursery they have no nappy changing facilities as such they call me and ask me to go in and change James' nappy if he has done a poo. As a parent I feel humiliated every time they call me to go in (I know it's only once a week for 2 hrs at this nursery, but James is regular so it is every week!). On top of this the other children will start noticing, I am sure it cannot be good for James' self esteem.
My 2 questions are:
What provisions do nurseries/schools need to make for ASD children regarding nappy changing?
Can private nurserys/schools successfully gain support for 1-2-1 support (free)?
I would really appreciate some advice as I want to do the best thing possible for James as this critical stage.
Many thanks Liz