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When is enoughs enough - and what then?

Hi, this is my first post and would like to explain my history and ask the forum when is enoughs enough?

My 11 year old daughter lost her mum aged 3 following a rapid onset of MS immediately following birth.  With some help from her maternal Nan I have pretty much brought her up on my own from birth.

When she was 5/6 her behaviour and presentation at mainstream school became very extreme and my new partner and I became very noisy about health concerns and critical of the provision.  Long and very tragic story short, she was taken into care for a year while the LA/School/CAHMS insisted there was nothing physically wrong with her and that given her innappropriate attachment to adults and extreme presentation she had clearly been subjected to the most horrific emotional, physical and sexual abuses imaginable.  The Care proceedings identified that she had a rare form of epilepsy, Autism, Moderate Learning Difficulties, Behavioural Issues and emotional issues and no evidence to support the claims against me.  Her lead diagnosis is autism.  My relief when she was at last returned to my care with the court appointed Nationallly renowned child psychiatrist insisting that mainstream education was in this case inapropriate and even abusive and the LA should place her in a special needs school as a first priority (even residential) 

That was 3 years ago....

My partner and I married and tried forming a new family including my step daughter with the court advising the LA that the new family unit should be given all available support..

My wife led the way in researching autism and adopting relevent strategies. I resurrected my career.

The LA resisted every effort I made to remover her from her mainstream school and for 3 years running we have begged social services for respite care and help but she apparantly does not even come close to meeting the criteria for ANY support!!!

Her education has made zero progress, she has been excluded for acts of violence towards teachers.  At home she has sadly rejected my wife despite years of integration and simply will not share me.  She rejects any authority and control, and barely tolerates my own. She has strangled my step daughter on 4 occasions and makes false allegations against everyone including teachers, foster parents, grandparents and step mum.

Things came to a head last Feb (2014) when after yet another failing at her mainstream school I felt compelled to remove her. Additionally, my wife was openly saying she cant take it any more and needs help urgently or its over.  I invited Social Services in and with the help of my daughters  doctor  informed the LA that my daughter would have to go into care again if no support was offered.  No support was offered, only more threats and a reminder that she was my daughter, my responsibility, that I had an obligation to leave my wife, that way it was only my life that would be destroyed by her condition.

My wife and I are now seperating.  Purely because she cannot take the abuse from my daughter and the LA any longer and feels powerless to protect her own daughter.  I am devestated but have felt that I needed to give one last fight for my daughters needs as I could not turn my back on her and if she was to go into care my soul needed it to be all down to me and not my wife.

I am now in the middle of a tribunal process to get her into a residential school.  I am having to sell my house for independent reports and to clear massive debts after 7 months off work with stress and to enable my wife and step daughter to have a helping hand going forward.

Since my appeal to the tribunal the games from the LA on top of everything else have made me very ill and as my daughters needs increase and puberty approaches, and my ability to meet those needs has now reached rock bottom I am close to the edge of human endurance.  Still she does not meet the criteria for support and certainly not enough for me to hold down a full time job.  Therefore I cant meet even the most basic of my daughters needs.

I now have no-one to help me.  No family, no respite, not a single person able to assist.  I have now decided that if I lose the tribunal appeal and cannot get her into residential education then I have to draw a line under it all and recognise that it is now more imprtant for her to have a dad who is alive and maintain an amazing relationship with his beautiful little giirl  than one who takes this further and ends up dead or in prison.

My daughter is a member of society, and if the guardians of society do all they possibly can to avoid the costs involved in meeting my daughters needs with no proactive model for support whatsoever then I need to cut myself some slack on the old guilt trip and recognise that she probably hasnt had any help because I have been such a rock and done an amazing job for my daughter.  I am clinging on by my fingertips and have even been to the GP saying I am on the verge of suicide or murder if my daughter does not get help and/or I dont let it all go........

I feel enoughs enough.....

Some would feel I may have taken this too far already, others might say not far enough.  How far would you go?

Any thoughts?????

Parents
  • Former Member
    Former Member

    Hi Stfal,

    I have been using this forum since I got diagnosed in May and I think your story is one of the most heart rending situations I have read about so far. My heart goes out to you and your daughter and I really do hope that you can look forward to a better year in 2015.

    I'm not an expert in the issues affecting you and your daughter but I hope I have some ideas to add so that you can have more paths to chose from. Other opinions are available and I am afraid that I may suggest things that are inappropriate or worse - I am not blessed with the most PC approach but that is fairly standard behaviour for people suffering from autistic spectrum disorders! Please accept my apologies for anything that causes offence - I am really trying to help but may well put my foot in it at some point.

    One poster on this forum earlier in the year went by the name of toothless community.autism.org.uk/.../24942 who described herself as severely classic autistic. She was diagnosed as having severe learning disabilities but was later diagnosed with autism and has been able to make considerable progress since the diagnosis. I think her story shows how worthwhile it can be to persist with someone who is behaving like your daughter.

    You have been through a tremendous ordeal and I would expect you to be really struggling to muster any coherence in your approach at this point. There is a lot of experience and expertese on this forum from a number of people who have spent years struggling with parenting issues and others struggling with our diagnoses. It can be a bit of lottery about who is active at any one time but it is worth coming back here for advice and support whenever you need it.

    Is your daughter able to describe her feelings and frustrations to you? A major strategy for anyone dealing with an autistic person is to try and see the situation from their point of view. From the history I suspect that, on top of her autism related issues, she has been traumatised by the loss of her mother and by the replacement with your second partner. Loss of a parent and any sort of replacement by another, however well meaning and loving person, is always going to be fraught with difficulties. For an autistic person it may well be far worse.

    It sounds as though you have been rattling the cages of the authorities in your area. I think you can see that this is sometimes counterproductive. Have you attempted any conciliation or arbitration with the relevant people? I know that it is not your fault that things have got to this point but have you tried apologising for any offence that you may have given?

Reply
  • Former Member
    Former Member

    Hi Stfal,

    I have been using this forum since I got diagnosed in May and I think your story is one of the most heart rending situations I have read about so far. My heart goes out to you and your daughter and I really do hope that you can look forward to a better year in 2015.

    I'm not an expert in the issues affecting you and your daughter but I hope I have some ideas to add so that you can have more paths to chose from. Other opinions are available and I am afraid that I may suggest things that are inappropriate or worse - I am not blessed with the most PC approach but that is fairly standard behaviour for people suffering from autistic spectrum disorders! Please accept my apologies for anything that causes offence - I am really trying to help but may well put my foot in it at some point.

    One poster on this forum earlier in the year went by the name of toothless community.autism.org.uk/.../24942 who described herself as severely classic autistic. She was diagnosed as having severe learning disabilities but was later diagnosed with autism and has been able to make considerable progress since the diagnosis. I think her story shows how worthwhile it can be to persist with someone who is behaving like your daughter.

    You have been through a tremendous ordeal and I would expect you to be really struggling to muster any coherence in your approach at this point. There is a lot of experience and expertese on this forum from a number of people who have spent years struggling with parenting issues and others struggling with our diagnoses. It can be a bit of lottery about who is active at any one time but it is worth coming back here for advice and support whenever you need it.

    Is your daughter able to describe her feelings and frustrations to you? A major strategy for anyone dealing with an autistic person is to try and see the situation from their point of view. From the history I suspect that, on top of her autism related issues, she has been traumatised by the loss of her mother and by the replacement with your second partner. Loss of a parent and any sort of replacement by another, however well meaning and loving person, is always going to be fraught with difficulties. For an autistic person it may well be far worse.

    It sounds as though you have been rattling the cages of the authorities in your area. I think you can see that this is sometimes counterproductive. Have you attempted any conciliation or arbitration with the relevant people? I know that it is not your fault that things have got to this point but have you tried apologising for any offence that you may have given?

Children
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