Daughter awaiting neurodiversity assessment - How to inform her?

Hello, our 9 year old daughter is currently recieving therapy from CAMHS for anxiety. She has only recently returned to school following a period of 9 months where she was unable to attend. Every day is a struggle for her, but she is trying her best to reintegrate.

CAMHS are progressing with a neurodiversity assessment which may or may not result in a diagnosis for her.

We have been advised by CAMHS that our daughter needs to be informed & consulted with in order that she is aware of this assessment. We have been told that she also must consent to this being undertaken & that she has the right to refuse/opt-out.

We understand why she should be engaged in this process, so that any outputs do not come as a shock to her, however we are also concerned that informing her may cause her undue stress or worry as we know her mind can go into overdrive. We are keen for the assessment to proceed as we believe this will help inform & possibly understand her better. We have no preconceptions over any diagnosis, indeed we are completely open-minded as to any potential outcome.

We want our daughter to feel empowered by this & not fearful of where this may lead, however we're worried that her being made aware of this assessment could make her feel very self-conscious. We're also concerned that should she decide not to proceed with the assessment that we may be left with a lot of unanswered questions relating to her anxiety issues.

Genuinely unsure how we approach this for the best.

Any guidance or advice would be gratefully recieved from those who have been in a similar situation.

Thanks!

Parents
  • Just to clarify, here’s some information on the language around autism. which I hope is helpful:

    "It is common for words related to neurodiversity to be misused. For example, people might say ‘Autistic people are neurodiverse’ when they mean ‘Autistic people are neurodivergent’.

    Examples of accurate phrases include:

    Humans are neurodiverse.
    Autistic people are neurodivergent.
    Autism is a form of neurodivergence."

    NAS - Autism and neurodiversity

    On a related note, in case it’s of interest, "allistic" is a term that we can use if and when we want to refer, specifically, to everyone who is not autistic.

    Neurodivergence / neurodivergent is commonly understood to cover people who have one or more of lots of different conditions (including autism, ADHD, epilepsy, and OCD, for example). And the kinds of differences / struggles that we can experience - as autistic people - aren't necessarily shared by all other neurodivergent people.

    So, often, to get our meaning across, it can be clearer to just refer to autism, if that's the condition that we really mean.

Reply
  • Just to clarify, here’s some information on the language around autism. which I hope is helpful:

    "It is common for words related to neurodiversity to be misused. For example, people might say ‘Autistic people are neurodiverse’ when they mean ‘Autistic people are neurodivergent’.

    Examples of accurate phrases include:

    Humans are neurodiverse.
    Autistic people are neurodivergent.
    Autism is a form of neurodivergence."

    NAS - Autism and neurodiversity

    On a related note, in case it’s of interest, "allistic" is a term that we can use if and when we want to refer, specifically, to everyone who is not autistic.

    Neurodivergence / neurodivergent is commonly understood to cover people who have one or more of lots of different conditions (including autism, ADHD, epilepsy, and OCD, for example). And the kinds of differences / struggles that we can experience - as autistic people - aren't necessarily shared by all other neurodivergent people.

    So, often, to get our meaning across, it can be clearer to just refer to autism, if that's the condition that we really mean.

Children