Bad day

Today has been a school holiday which usually I love but I've been really struggling over the past days.  I wouldn't change anything but the past few days I've been struggling and that makes me annoyed with myself.

Both my older sons are on the autistic spectrum.  My middle son has a lot of issues with social interaction and doesn't have any friends in his year at school (although interacts well with his brothers and adults).

If my son is anxious he will often wet/soil himself at home ... generally not at school.  He's not done it for some time but over the past few days it's been happening more and more.  Today twice.  To my shame, I got cross with him about it this morning and I feel so ashamed.

Both my husband and I have tried talking with him and bringing the subject around to anything upsetting him but he can't tell us and we don't push it.  He's seeking a lot of reassurance and this evening I heard talking in bed saying "My Mummy loves me, I love my Mum.  My Mummy loves me, I love my Mum" over and over again and then the same about his Dad.  I feel so bad

One of his traits is constantly talking in a monotone, listing what he's going to do or what he's done ... sometimes he will look for us to listen to him and other times he's talking to himself ... but there's nothing being said to give us any clues what's bothering him.

I love my boys and wouldn't want them to be anything other than they are but sometimes it breaks my heart that my lad is limited in his communication.  We took a picture on holiday (well lots!) and when we looked at it later realised that he was sitting in front of a garden with a "private" notice on the gate ... the word "private" is right beside his head and it seems to appropriate ... his wee mind is private and I can't be part of it!

Sorry for rambling on, I feel blue and have to keep reminding myself this isn't all about me.

Parents
  • My beautiful boys, I love them so much but the past few days have been so hard.  Family members can make life so much more difficult can't they ... my Mum says she supports us but disapproves of me going to any Autism Support groups as my boys "aren't difficult to handle".  She told me she was embarrassed taking them to the summer activity scheme (obviously, next time I'll make sure they go on days I can take them myself).  It really makes me doubt myself and what's going on. 

    MS has no dx yet but his behaviour is getting more and more difficult to handle.  He had an outburst in school this week that worked him up so much he was ill.  His teacher and SA spoke to me about it and both said the school needs to take a step back and consider, with us, what's best for him ... I'm so worried.

    ES is a totally different kettle of fish ... very popular in school although he does get anxious in unfamiliar surroundings.  But he's never aggressive and copes well with life ... he's even managing to cope with his music lessons and assemblies in school.

    Our schools are on holidays this coming week and we're off for a few days which I'm really looking forward to ... no mobile phone signal and no internet access ... just me, DH and our boys ... bliss :-)

Reply
  • My beautiful boys, I love them so much but the past few days have been so hard.  Family members can make life so much more difficult can't they ... my Mum says she supports us but disapproves of me going to any Autism Support groups as my boys "aren't difficult to handle".  She told me she was embarrassed taking them to the summer activity scheme (obviously, next time I'll make sure they go on days I can take them myself).  It really makes me doubt myself and what's going on. 

    MS has no dx yet but his behaviour is getting more and more difficult to handle.  He had an outburst in school this week that worked him up so much he was ill.  His teacher and SA spoke to me about it and both said the school needs to take a step back and consider, with us, what's best for him ... I'm so worried.

    ES is a totally different kettle of fish ... very popular in school although he does get anxious in unfamiliar surroundings.  But he's never aggressive and copes well with life ... he's even managing to cope with his music lessons and assemblies in school.

    Our schools are on holidays this coming week and we're off for a few days which I'm really looking forward to ... no mobile phone signal and no internet access ... just me, DH and our boys ... bliss :-)

Children
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