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Any advice would be appreciated

lottie4321

Hello everyone, I am hoping for some advice or to hear from someone who has been in a simulation situation. 

we had our first paediatrician appointment last year, at the time the plan was for my daughter to have an ADOS assessment due to the limited evidence from nursery. Since then, I’ve moved her to a new nursery/ school, but communication from them has been really poor. I honestly have very little understanding of how she’s doing day to day aside from target being made each term. 

because of the schools lack of communication Specialist Health Visitor attended the school herself to observe my daughter and wrote a report based on what she saw she felt strongly enough to send this straight to the paediatrician and suggested that an ADOS assessment might not be the best route and that’s a paediatric review was needed instead 

we had our appointment today and to be honest it was really disappointing the paediatrician initially only looked at the previous paediatrician report ( which recommended ADOS assessment) and seemed ready to follow that plan again it was only after I explained everything that we have been through and the new supporting evidence we had that he then looked through the Specialist Health Visitor report and reconsidered his decision 

The whole appointment lasted 30 minutes And by the end I was told was that a report would be sent to the school recommending an EHCP be put in place stating that he recommended additional support be needed I left feeling very deflated I had expected a more thorough decision especially given how much has happened since our last appointment 

I guess my main question is is it normal for these kind of appointments to be so short it just feels very overwhelming that’s such important decisions about a child’s future is made with such limited time especially when all the information has not been reviewed thoroughly beforehand 

any advice or shared experiences would be really appreciated 

thank you

Parents

  • We were referred to paed two and a half years ago as child did not meet milestones on speech on yearly review. Paed saw us, asked us (parents ) some questions, made some notes while child was in the room. It probably was about 30 minutes at best. Said something between the lines 'let's see how progress goes once kid spends 6 months in nursery'. We had second appointment with the same paediatric, questions for us to answer, a while later (nearly a year in fact, and we had to chase it), where we were discharged and told we'll be referred to the autism team. About four months later we got accepted to the autism team a notified that the waiting time is about three years in our area. Child is 4 and a half, non-verbal, in nappies and with limited understanding of speech (some single words, completely oblivious to potty training attempts) is about to start recepon in September in a mainstream school. 

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  • We were referred to paed two and a half years ago as child did not meet milestones on speech on yearly review. Paed saw us, asked us (parents ) some questions, made some notes while child was in the room. It probably was about 30 minutes at best. Said something between the lines 'let's see how progress goes once kid spends 6 months in nursery'. We had second appointment with the same paediatric, questions for us to answer, a while later (nearly a year in fact, and we had to chase it), where we were discharged and told we'll be referred to the autism team. About four months later we got accepted to the autism team a notified that the waiting time is about three years in our area. Child is 4 and a half, non-verbal, in nappies and with limited understanding of speech (some single words, completely oblivious to potty training attempts) is about to start recepon in September in a mainstream school. 

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