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Hello I’m new here and looking for some advice/support

Rara

Hi Wave I’m mother to the most wonderful teen who was diagnosed with ASD last year. I’m a single parent with an ex who is probably on the spectrum as well.

We are really struggling with school attendance, its been a few years now. They are bright and enjoy learning and when feeling well actually want to go to school!! They experience dizziness and limb pain and brain fog and I just wondered if anyone else here has experienced the same/similar? We’ve been to many different doctors and psychologists but so far not much has helped. My gut feeling is that this is sensory overload.

id love to hear any idea of ways to help, any would be greatly appreciated

 thanks for reading! Pray 

Parents

  • My son ASD, 19 now and was only fairly recently diagnosed with dysautonomia (postural hypotension & vasovagal syncope). Presumed it was sensory for years but was getting worse in the mornings as being dehydrated can make it worse. Was confirmed by a tilt table test. Was sent to psychologist first just like yourself. Might be worth checking his blood pressure from laying to standing. There are some instructions how youtube on how to do as well as checking for POTS. Some just generally have low blood pressure. It's not talked about enough really, made a lot of sense when he finally got diagnosis. He now feels more in control, it's the not knowing that's scarier than anything. Hope that helps.

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  • My son ASD, 19 now and was only fairly recently diagnosed with dysautonomia (postural hypotension & vasovagal syncope). Presumed it was sensory for years but was getting worse in the mornings as being dehydrated can make it worse. Was confirmed by a tilt table test. Was sent to psychologist first just like yourself. Might be worth checking his blood pressure from laying to standing. There are some instructions how youtube on how to do as well as checking for POTS. Some just generally have low blood pressure. It's not talked about enough really, made a lot of sense when he finally got diagnosis. He now feels more in control, it's the not knowing that's scarier than anything. Hope that helps.

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