Parentistic

My apologies for the subject title. I have a liking for making up words in my own writing, but 'parentistic' is a lacklustre attempt at a neologism (hmm, interesting how 'auto correct' suggests 'geologist' for 'neologism') as far as current trends go. I can't see it catching on. Anyway, at the risk of having got some kind of attention (I'm just a lonely middle-aged man) I shall wrap up this rather pointless opening paragraph.

I love my children. At the risk of upsetting the censor, I will furtively mention here that I really don't think I would carry on if it wasn't for the fact that I've managed to reproduce myself and I feel that I owe it to them to be their dad. I endure and enjoy their presence at the same time. 'Endure' may sound like the 'wrong word' (a lot of words I use tend to find consensus in somehow being wrong) but perhaps other parents may understand that enduring and enjoying the presence of one's children can seem quite apt. Their mum is 'officially' autistic - I'm in that eternal grey area of being told that I'm autistic but am unlikely to receive the official member's club welcome (that's right, I do at least try to have a sense of humour, even though I'm witless) as I see right through the AQ10 forms etc and don't seem to either understand 'choice' or have any will of my own. I don't think that I am autistic, but I think I'm finding it harder to mask whatever it is that I'm not since my most recent nervous breakdown and the doctors just look at me funny when I suggest anything pertaining to the schizophrenia spectrum or dissociative disorders, and they seem more in their comfort zone when regarding me as an autistic man. So maybe I am something after all.

I'm getting there...

Genetic studies of course suggest that the children of autistic parents are more likely to be autistic themselves. Both my children are 'juniors' now: my son is in year 5 and my daughter is in year 3. I'm doing what I can for them, in my own unique way, and their mum is doing great with them, especially since we separated three years ago. I thought I'd 'lost' them when I had to go into hospital for a while, but I think it is largely because I am still friends with my ex-wife that I can still consider myself a father. I would anyway, of course, but it would be harder without her support and encouragement. I'm worried about my children. I think that it's only going to get worse - my worrying that is, not necessarily my children's prospects. They are already talking about how 'different' they feel they are amongst other children and, if they follow in their parents footsteps, the dreaded life-long weight of 'not fitting in' will surely cast a shadow over the innocence of life before long. My wife suffered with bullying. I somehow managed to avoid direct exposure to it, though only because I managed to mask and unfortunately deflect attention away from myself in ways that other less camouflaged children couldn't. My intelligence helped keep me 'beyond the radar', so to speak, and it was more so towards the end of formal schooling when I realised that I just can't function independently. So I'm guilty of projecting my own fears of the crushing burden of impending adolescence upon the next generation, but the fears are real. We're not rich (I don't even work) so it'll have to be the local comp, in an area which is new to me and my own paranoia inhibits me from reaching out to other parents or school staff, probably as much as my ex-wife's own anxieties. The children probably sense the frustration that we are 'different' parents and that they are 'different' children. Yes, the hope of inclusivity etc is precisely that - a hope that things can be better as generations evolve. 

That last paragraph was a bit on the chunky side, and I've forgotten who I am anyway. Something about being a dad, being a good person even and being lonely but reaching out for help. Sounds familiar. I'll probably forget that I even wrote this and wake up believing that I'm sane, or something silly like that. Yeah, it's been tough. Knowing that it's tough for many gets me through. Not in a schadenfreude sense though (I know that every other person, especially men, are accused of being 'narcissists' these days, but I don't think I am) but in the sense of gaining strength from collective suffering and sharing in the struggle of life which I'm a part of. Empathy, that's it. I have empathy - I just don't know how to express it. Well, I don't know how to express a lot of things. I'm a good person though. Yeah, I must be. My mum says I am.

I think that's it. Life's hard. But I've got to keep going for the children.

Parents
  • It must be something about a Friday night, I was sitting failing to read a book a really want to read (I think I am having a falling out with the author), and started worrying about my kids and highschool. 

    My son will start highschool next August, and was diagnosed last December. He struggled with friendships but in the last few years due to it being a small rural school and his interest being gaming, he's been part of the group more. But after the summer, there is only one other boy moving up (it's a mixed year class), and now I know he and I are autistic, it is very obvious in him. (We both being recent to diagnosis).

    High school was awful for me, and I've always been terrified of my kids being bullied too. At their small school, that thankfully hasn't been too bad -they've struggled to connect with others, and my daughter is really struggling in the playground, but they at least don't have the bullying, just the being different and not fitting in well.

    Other 'different' male kids who have gone to the local highschool have been physically attacked, sometimes on their first day. Trying to not pass fears on but simultaneously thinking of home educating if it doesn't work out. (Not helped by their teacher telling everyone about what had happened to that boy).

    Just being there as a presence can be a comfort for kids.

    And I just wanted to add you have an entertaining writing style, so don't worry about the meandering thoughts, I did better with it then the book I was trying to read.

  • Thank you for your reply, Cinnabar_wing. (Any relation to Lorna? I apologise for the obscurity of my small talk.) And thank you for referring to my writing style in what I take to be a positive way. Often when I write openly on discussion boards/fora, my paranoia kicks in as soon as I post, and I expect to be excommunicated or, in the neologistic mimicry of post-modernity, 'cancelled'. So I try not to be contentious, but took my chances on a community board for autistics in just trying to be more authentically me when writing. So far no censorious wrist slap, which is good all round, I'll posit.

    I hope you can either find a way of persevering with the author, or have the courage to ditch them. I managed The Bible (the 'unauthorised version') every day last year and perseverance pays off for the sake of achievement, but a 'DNF' ('did not finish', as I think either me or my ex-wife coined) can also be satisfying when the author is just, well, bad.

    Anyway, beyond digression...

    I appreciate you sharing your own parental fears, justifiably so by the sound of it, partly as a consequence of personal experience and partly due to the worrying logic that a dreadful school experience does tend to be fairly consistent with the autistic experience. Certainly a way of understanding the astronomical depths of masking/camouflaging that need to be expended merely to avoid being seen as the person that you actually are, but simultaneously have every reason to fear being the person that you cannot reveal. At least, something depressing like this has been my 'seared-in-the-brain' takeaway from educational institutionalising (I wasn't a border, but the oppressiveness of day-in-day out 'acting' often felt like some kind of unending 'hazing' that never served any purpose).

    It's unclear whether either my son, or daughter, will receive their diagnosis anytime soon, but more than likely their experience at high/secondary school will make such a diagnosis more likely. Knowing that their mum is autistic and that their dad (yours truly) has been told umpteen times that he presents as an autistic, even though he isn't (to date) 'officially' so, should hopefully make the diagnostic process more genetically relatable, in line with the current understanding of who is more likely to be autistic. 

    My son is showing the signs of seeking sanctuary within his own virtual world (Minecraft seems to really speak to him) and my daughter's fixation on cats is getting to the point where some kind of intervention into residual fears will hopefully help her see things in less black and white terms. I was (mis?)-,diagnosed with borderline personality disorder whilst spending time in hospital over a year ago, and so my worry is compounded by how my own lifelong struggle with emotional dysregulation could reveal itself to be an awkward part of my own children's experience. 

    I have found that learning more about how my own mind works can 'feel' more real as I observe and kind of reminisce about my own childhood-adolescent experience as I remain a presence in my children's lives. I tell myself that I'm doing the right thing by being present in their lives, despite the marital separation which seems to be statistically 'normal' anyway. But especially if autism is something that 'unites' us as a family, I'm hopeful that our shared experiences can give us strength, each one of us. 

    mr.chip is rounding this off now, evidently in the third person for no reason. My attention was diverted so far through writing, which has cumulatively taken a couple of hours. 'And so to bed', in the words of a famous diarist with a penchant for Parmesan cheese. I'm hoping to attend a creative writing course tomorrow and make things like this more regular. Also helpful as 'scaffolding' to buttress my mental health anxieties when it's my turn to return to whatever employment placement I'm destined to attempt next, with some kind of support perhaps in preparation. I was kicked off a teacher training course before going into hospital due to the stress, told that I am due 'reasonable adjustments' by medical opinion but refused this by the educational establishment, so I've got my own personal experience of the very real barriers that autistic people face when trying to secure employment, especially fitting/suitable employment.

    It has been nice to write back virtually.

Reply
  • Thank you for your reply, Cinnabar_wing. (Any relation to Lorna? I apologise for the obscurity of my small talk.) And thank you for referring to my writing style in what I take to be a positive way. Often when I write openly on discussion boards/fora, my paranoia kicks in as soon as I post, and I expect to be excommunicated or, in the neologistic mimicry of post-modernity, 'cancelled'. So I try not to be contentious, but took my chances on a community board for autistics in just trying to be more authentically me when writing. So far no censorious wrist slap, which is good all round, I'll posit.

    I hope you can either find a way of persevering with the author, or have the courage to ditch them. I managed The Bible (the 'unauthorised version') every day last year and perseverance pays off for the sake of achievement, but a 'DNF' ('did not finish', as I think either me or my ex-wife coined) can also be satisfying when the author is just, well, bad.

    Anyway, beyond digression...

    I appreciate you sharing your own parental fears, justifiably so by the sound of it, partly as a consequence of personal experience and partly due to the worrying logic that a dreadful school experience does tend to be fairly consistent with the autistic experience. Certainly a way of understanding the astronomical depths of masking/camouflaging that need to be expended merely to avoid being seen as the person that you actually are, but simultaneously have every reason to fear being the person that you cannot reveal. At least, something depressing like this has been my 'seared-in-the-brain' takeaway from educational institutionalising (I wasn't a border, but the oppressiveness of day-in-day out 'acting' often felt like some kind of unending 'hazing' that never served any purpose).

    It's unclear whether either my son, or daughter, will receive their diagnosis anytime soon, but more than likely their experience at high/secondary school will make such a diagnosis more likely. Knowing that their mum is autistic and that their dad (yours truly) has been told umpteen times that he presents as an autistic, even though he isn't (to date) 'officially' so, should hopefully make the diagnostic process more genetically relatable, in line with the current understanding of who is more likely to be autistic. 

    My son is showing the signs of seeking sanctuary within his own virtual world (Minecraft seems to really speak to him) and my daughter's fixation on cats is getting to the point where some kind of intervention into residual fears will hopefully help her see things in less black and white terms. I was (mis?)-,diagnosed with borderline personality disorder whilst spending time in hospital over a year ago, and so my worry is compounded by how my own lifelong struggle with emotional dysregulation could reveal itself to be an awkward part of my own children's experience. 

    I have found that learning more about how my own mind works can 'feel' more real as I observe and kind of reminisce about my own childhood-adolescent experience as I remain a presence in my children's lives. I tell myself that I'm doing the right thing by being present in their lives, despite the marital separation which seems to be statistically 'normal' anyway. But especially if autism is something that 'unites' us as a family, I'm hopeful that our shared experiences can give us strength, each one of us. 

    mr.chip is rounding this off now, evidently in the third person for no reason. My attention was diverted so far through writing, which has cumulatively taken a couple of hours. 'And so to bed', in the words of a famous diarist with a penchant for Parmesan cheese. I'm hoping to attend a creative writing course tomorrow and make things like this more regular. Also helpful as 'scaffolding' to buttress my mental health anxieties when it's my turn to return to whatever employment placement I'm destined to attempt next, with some kind of support perhaps in preparation. I was kicked off a teacher training course before going into hospital due to the stress, told that I am due 'reasonable adjustments' by medical opinion but refused this by the educational establishment, so I've got my own personal experience of the very real barriers that autistic people face when trying to secure employment, especially fitting/suitable employment.

    It has been nice to write back virtually.

Children
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