Autonomic dysfunction in autism

Anyone elses young people out there have autonomic dysfunction? My son was diagnosed with orthostatic hypotension/vasovagal syncope fairly recently. Has blood pressure drops on standing and near fainting episodes for anything that provokes fight or flight response. Pots and syncope service says it is common in autism. He's been this way forever but was difficult to tell with meltdowns etc. School treat it like it was a behaviour problem when there was refusals in PE or lining up. He is 19 now, i think it would have been easier knowing and think they would have been kinder. Quite upsetting looking back at times he's struggled and been punished for it. How many out there with same difficulties and put down to autistic behaviour?? It's a scary thought, i thought i was quite knowledgeable about anything autism related but had never heard of it. Had told consultants about issues with lining up etc and not picked up by them either when all the signs were there really. Would love to hear anyone elses experience/thoughts.

Parents
  • I had hypertension, but since I have been on anti-hypertensive medication I have had dizzy episodes on standing. My BP is now well within the normal range. I have had one episode where I blacked out completely on standing from getting out of bed. I fell, taking a table with me,  but no lasting injury, thankfully. I have come across other autistics with POTS. I suspect that orthostatic hypotension is another co-occurring condition common to autists, like gut problems and hypermobility.

Reply
  • I had hypertension, but since I have been on anti-hypertensive medication I have had dizzy episodes on standing. My BP is now well within the normal range. I have had one episode where I blacked out completely on standing from getting out of bed. I fell, taking a table with me,  but no lasting injury, thankfully. I have come across other autistics with POTS. I suspect that orthostatic hypotension is another co-occurring condition common to autists, like gut problems and hypermobility.

Children
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