Eating Disorders

Hi everyone!

My teenager is autistic (not officially diagnosed yet, we’re waiting for the final multidisciplinary appointment). I’m aware that eating challenges often come up in autism, and much of the information I’ve found focuses on skipping meals, avoiding mealtimes or eating very little and suffering deficiencies. Our situation is different and I’ve had trouble finding much information about it, my child is constantly hungry, always asks for food or snacks, and doesn’t feel satisfied with smaller portions. Because of this, they’ve gained a lot of weight, and it’s getting worse. They do  want to lose weight, exercise more and eat healthier, but “eating healthier” is very hard for them because they have a restrictive diet and we’re trying different foods but with limited success. I’d love to hear from anyone who has faced constant hunger or eating a lot (rather than eating too little) in an autistic child or teenager.
What reasons did you find for that?
What strategies helped you?
Are there any good resources, books or support groups you found useful?

Thanks in advance, any shared experience is really helpful.

Parents
  • Hi  I had ARFID as a teenager and whilst I know your teenager isn’t eating less you do mention they have a restricted diet and so I wondered whether they have become deficient in some nutrients, vitamins etc? Their body may be craving more food to fill in any gaps? I think a GP visit would be your best starting point. Is your teenager able to visit the GP?

Reply
  • Hi  I had ARFID as a teenager and whilst I know your teenager isn’t eating less you do mention they have a restricted diet and so I wondered whether they have become deficient in some nutrients, vitamins etc? Their body may be craving more food to fill in any gaps? I think a GP visit would be your best starting point. Is your teenager able to visit the GP?

Children
  • Thanks so much for your comment! She is taking her vitamins and supplements, so that part’s covered. Visiting the GP is actually tricky for her, the practice is small and usually quite warm, which can trigger her anxiety and even panic attacks. We’ve asked for reasonable adjustments like a cooler room, but unfortunately they can’t really provide that. I really appreciate you asking if she’s able to go to the GP, no one’s asked that before, it was such a kind and thoughtful question :)