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Medical gaslighting?

Mother.of.demons

Hi all, brand new here and I have a question.

Is chronic pain caused by autism??

Let me explain, because even writing it out, that sounds like a really stupid question 

My daughter (diagnosed this year after 8 years of fighting with the nhs) has started suffering with leg pain, numbness, tingling and most worrying of all sudden collapse in the last 3 months. The gp did routine bloods which of course showed nothing of note, but during a follow up appointment I mentioned her autism as she was tired and the mask was gone, which is rare for her, but we needed the gp to take time to understand her.

I think this was a mistake.

At the end of the consultation he said he thought the pain was sensory (isn't all pain sensory??) And a result of her autism. I was too taken aback to question or ask about management. Was this just abject gaslighting? Is it a thing? Ive been scouring the Internet and can find a lot about autism pain being dismissed but nothing about it being a cause. Im at a complete loss, dd already has zero faith in the medical profession after being gaslit for 8 years. I feel like a fraud insisting she should see a Dr only to be dismissed.

Please help.

Parents

  • Had the same with my son for years, dismissed over and over. Only at an appointment for something unrelated they found out he had autonomic problems with blood pressure regulation. Then still had to push for referral to cardiac/POTS/syncope clinic. Pots/syncope can cause leg pain due to pooling of blood in legs. Can be checked at home, some tutorials online how to do but basically checking for changes in blood pressure/heart rate from laying to standing. I felt he'd been really let down. Would probably have had better support in school if known. Unfortunately happens a lot with invisible disabilities. If you feel something not right, don't be dismissed. Tell them exactly what you want and stick to your guns. Good luck

Reply

  • Had the same with my son for years, dismissed over and over. Only at an appointment for something unrelated they found out he had autonomic problems with blood pressure regulation. Then still had to push for referral to cardiac/POTS/syncope clinic. Pots/syncope can cause leg pain due to pooling of blood in legs. Can be checked at home, some tutorials online how to do but basically checking for changes in blood pressure/heart rate from laying to standing. I felt he'd been really let down. Would probably have had better support in school if known. Unfortunately happens a lot with invisible disabilities. If you feel something not right, don't be dismissed. Tell them exactly what you want and stick to your guns. Good luck

Children
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