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I'm frustrated!!

KittyKat

It's hard to know where to start! My son is almost 3 and has been diagnosed with autism - they're not sure what kind yet as his development is significantly delayed (alomost half of what it should be) so it's hard for them to assess him properly.

I'm frustrated because I feel like I'm surrounded by people who are (to some extent) supportive (although this very rarely translates into any practical help) but that whenever I have a day (like today!) were I'm just sad about his diagnosis, that I come in for a load of flack about how I should get over it and be happy that I have a healthy baby and that given a few years he'll be fine and if I just stopped comparing him to his sister (which I'd like to say I don't!) I'd be much happier.

Why does everyone around me seem to feel that it's such a terrible crime for me just to want to feel sad about it for a little while before I pull myself together (also everyone's advice!!) and carry on?

I suppose all I want is for someone to give me a hug, say "it's fine - have a good cry, feel sad and then get cracking again" - it's not a lot to ask for is it?

Parents

  • Hi kittykat

     

    Im sorry you are having such a hard time. I dont know if this will help you but I put together a information pack about my son when he was around this age. It held all the offical reports but also leaflets from places like the NAS which had a lot of helpfull info in for all the people who had dealings with my son, like schools and playgroups etc. I found just giving it to people smiling and saying "when you have a few minutes you might find this helpfull."

    It stoped a lot of the eye rolling and made it seem as if it wasnt me trying to battle with people to make them understand and i could refer to it in the future.

    It might not help you because I found most of the problems were to do with lack of understanding and them not knowing where to find, or have the time to find the info they needed. This is new to alot of them too.

    sending more hugs to you.

     

    Sam x

Reply

  • Hi kittykat

     

    Im sorry you are having such a hard time. I dont know if this will help you but I put together a information pack about my son when he was around this age. It held all the offical reports but also leaflets from places like the NAS which had a lot of helpfull info in for all the people who had dealings with my son, like schools and playgroups etc. I found just giving it to people smiling and saying "when you have a few minutes you might find this helpfull."

    It stoped a lot of the eye rolling and made it seem as if it wasnt me trying to battle with people to make them understand and i could refer to it in the future.

    It might not help you because I found most of the problems were to do with lack of understanding and them not knowing where to find, or have the time to find the info they needed. This is new to alot of them too.

    sending more hugs to you.

     

    Sam x

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