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hi everyone

jakethesnakesmum

Hi Everyone

 

I am Amanda and mum to 3 kids, one with autism, although i am certain my other 2 have something wrong too.  I'm not too sure how i feel or what i am doing so thought i could find some solace with other parents in the same position.

 

We always knew there wasn't something quite right with Jake, now 6, he didn't make eye contact or weight bear as a toddler and only started to walk after intense physio when he was 2, he didn't talk til he was nearly 4 and relied on Makaton. About 2 years ago he was diagnosed as Autistic and Dyspraxic which i immediately accepted and seeked the help he needed although tbh we have been very very lucky with all the support Jake has had and i feel very confident that without it he would be a very different little boy today.  My problem lies with the school.  They are very good with him but always telling me he's fine at school so must be something i am doing and they are not sure of his diagnosis (despite having a statement at 2) but then when the annual review comes round they say they have broken the budget as he has been needing extra support to deal with his anxiety !?! Whenever i feel like i need to find extra support someone convinces me he's fine and it's all in my head - does anyone else experience this from teachers or well meaning friends and family? We've got to a point now where i can't cope with his outbursts and moodswings. He physically attacks us when he doesn't get his own way and is always screaming and running off. I just need to feel that i am not alone or a bad mother.  I could rabbit on for ages but don't want to scare you all off.

 

I hope there is someone who recognises themselves in this and can help me before i lose my mind.  I didn't realise how down this is getting me until today when i realised just how hard i work to appease him.  I love him dearly and wouldn't swap him for the world but its so hard sometimes. My youngest daughter is only 17 months younger than him and is exactly the same - almost worse - but i can't get help as the school refuse to accept there is anything wrong (despite being on school action plus!!)

Anyway would love to speak to other parents if i haven't sent you all running. Thanks for taking the time to read this.

Amanda xx

 

Parents

  • Hi sanders,

    Everything you have said rings a bell with me I have four children. My Eldest does have meltdowns and can be very emotional and angry at home but when he was younger and out at school etc he didnt, he would bottle it all for at home. It makes it difficult because the schools etc dont have any difficulties with his behaviour just had to deal with his physical needs that were due to his dyspraxia. I think this is mainly why he wasnt diagnoised with AS till he was 16.

    My youngest doesnt meltdown at all he is always and i do mean ALWAYS happy, which sounds great at first but he has no emoional understanding of things and believe me when things are tough and you have a happy bubbley 11 year old jumping around the house it is very draining. People say he is just immature and a bit hyper he will catch up, but the immaturity gap between him and his peers is just getting bigger. He still inturupts all the time he winds his older brother up untill he goes into meltdowns! chasing him for a cuddle when everyone knows you dont touch him. Whilst laughing!! ahhhh!!!

     

    Im so happy you have good friends but a bit wrong of nursery teacher to off been talking about your kids! but well done your friend for putting them into their place.

    Best of luck

    Sam

    x

     

Reply

  • Hi sanders,

    Everything you have said rings a bell with me I have four children. My Eldest does have meltdowns and can be very emotional and angry at home but when he was younger and out at school etc he didnt, he would bottle it all for at home. It makes it difficult because the schools etc dont have any difficulties with his behaviour just had to deal with his physical needs that were due to his dyspraxia. I think this is mainly why he wasnt diagnoised with AS till he was 16.

    My youngest doesnt meltdown at all he is always and i do mean ALWAYS happy, which sounds great at first but he has no emoional understanding of things and believe me when things are tough and you have a happy bubbley 11 year old jumping around the house it is very draining. People say he is just immature and a bit hyper he will catch up, but the immaturity gap between him and his peers is just getting bigger. He still inturupts all the time he winds his older brother up untill he goes into meltdowns! chasing him for a cuddle when everyone knows you dont touch him. Whilst laughing!! ahhhh!!!

     

    Im so happy you have good friends but a bit wrong of nursery teacher to off been talking about your kids! but well done your friend for putting them into their place.

    Best of luck

    Sam

    x

     

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