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hi everyone

jakethesnakesmum

Hi Everyone

 

I am Amanda and mum to 3 kids, one with autism, although i am certain my other 2 have something wrong too.  I'm not too sure how i feel or what i am doing so thought i could find some solace with other parents in the same position.

 

We always knew there wasn't something quite right with Jake, now 6, he didn't make eye contact or weight bear as a toddler and only started to walk after intense physio when he was 2, he didn't talk til he was nearly 4 and relied on Makaton. About 2 years ago he was diagnosed as Autistic and Dyspraxic which i immediately accepted and seeked the help he needed although tbh we have been very very lucky with all the support Jake has had and i feel very confident that without it he would be a very different little boy today.  My problem lies with the school.  They are very good with him but always telling me he's fine at school so must be something i am doing and they are not sure of his diagnosis (despite having a statement at 2) but then when the annual review comes round they say they have broken the budget as he has been needing extra support to deal with his anxiety !?! Whenever i feel like i need to find extra support someone convinces me he's fine and it's all in my head - does anyone else experience this from teachers or well meaning friends and family? We've got to a point now where i can't cope with his outbursts and moodswings. He physically attacks us when he doesn't get his own way and is always screaming and running off. I just need to feel that i am not alone or a bad mother.  I could rabbit on for ages but don't want to scare you all off.

 

I hope there is someone who recognises themselves in this and can help me before i lose my mind.  I didn't realise how down this is getting me until today when i realised just how hard i work to appease him.  I love him dearly and wouldn't swap him for the world but its so hard sometimes. My youngest daughter is only 17 months younger than him and is exactly the same - almost worse - but i can't get help as the school refuse to accept there is anything wrong (despite being on school action plus!!)

Anyway would love to speak to other parents if i haven't sent you all running. Thanks for taking the time to read this.

Amanda xx

 

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  • hi , i am a mother of 5 kids one of my youngest has beed diagnosed with adhd / autism ..the school and the nursery have completely denied that there are any problems and have been completely awkward when the have been asked for reports by speech therapy in fact i have been waiting for 3 months for reports for both the twins as my non asd has speech problems ..and they cant give me an appoinment until these reports come through ..thank god for support from friends ..one of the nursery teachers actually went into a local shop where my best friend works and was discussing how cute they were on their first day at school . my friend happened to say i just hope wee mac (asd one ) will settle in ok ..the teacher replied well we've never had any bother with him hes fine ..to that my friend answered well once u get to know him and his asd traits i'm afraid its very obvious .. through discreet observation at nursery i witnessed my son regularly standing on his own banging away on the desks with things and completely having no eye contact at all ..just because he doesnt become violent or scream out here they think there is nothing wrong :( i have been watching the twins in the playground of their new school and my non asd is running around shouting and playing with all the other children and my little one is wandering around on his own ..sometimes i feel that they are just turning a blind eye  .. its very sad     

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  • hi , i am a mother of 5 kids one of my youngest has beed diagnosed with adhd / autism ..the school and the nursery have completely denied that there are any problems and have been completely awkward when the have been asked for reports by speech therapy in fact i have been waiting for 3 months for reports for both the twins as my non asd has speech problems ..and they cant give me an appoinment until these reports come through ..thank god for support from friends ..one of the nursery teachers actually went into a local shop where my best friend works and was discussing how cute they were on their first day at school . my friend happened to say i just hope wee mac (asd one ) will settle in ok ..the teacher replied well we've never had any bother with him hes fine ..to that my friend answered well once u get to know him and his asd traits i'm afraid its very obvious .. through discreet observation at nursery i witnessed my son regularly standing on his own banging away on the desks with things and completely having no eye contact at all ..just because he doesnt become violent or scream out here they think there is nothing wrong :( i have been watching the twins in the playground of their new school and my non asd is running around shouting and playing with all the other children and my little one is wandering around on his own ..sometimes i feel that they are just turning a blind eye  .. its very sad     

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