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hi everyone

jakethesnakesmum

Hi Everyone

 

I am Amanda and mum to 3 kids, one with autism, although i am certain my other 2 have something wrong too.  I'm not too sure how i feel or what i am doing so thought i could find some solace with other parents in the same position.

 

We always knew there wasn't something quite right with Jake, now 6, he didn't make eye contact or weight bear as a toddler and only started to walk after intense physio when he was 2, he didn't talk til he was nearly 4 and relied on Makaton. About 2 years ago he was diagnosed as Autistic and Dyspraxic which i immediately accepted and seeked the help he needed although tbh we have been very very lucky with all the support Jake has had and i feel very confident that without it he would be a very different little boy today.  My problem lies with the school.  They are very good with him but always telling me he's fine at school so must be something i am doing and they are not sure of his diagnosis (despite having a statement at 2) but then when the annual review comes round they say they have broken the budget as he has been needing extra support to deal with his anxiety !?! Whenever i feel like i need to find extra support someone convinces me he's fine and it's all in my head - does anyone else experience this from teachers or well meaning friends and family? We've got to a point now where i can't cope with his outbursts and moodswings. He physically attacks us when he doesn't get his own way and is always screaming and running off. I just need to feel that i am not alone or a bad mother.  I could rabbit on for ages but don't want to scare you all off.

 

I hope there is someone who recognises themselves in this and can help me before i lose my mind.  I didn't realise how down this is getting me until today when i realised just how hard i work to appease him.  I love him dearly and wouldn't swap him for the world but its so hard sometimes. My youngest daughter is only 17 months younger than him and is exactly the same - almost worse - but i can't get help as the school refuse to accept there is anything wrong (despite being on school action plus!!)

Anyway would love to speak to other parents if i haven't sent you all running. Thanks for taking the time to read this.

Amanda xx

 

Parents

  • Hi all,

     

    I know what you mean oatie, I know several people who dont spend much time with my kids and still maintain that there is nothing wrong.

    Thats CAMHS refering my youngest for formal testing, I still dont know if im doing the right thing but i think it is neccesary before he starts secondary to know for sure what challenges he has. He is very different from my eldest but im trying to remember its a big spectrum and he could be on it in a very different way.

    I agree that the united nations job would probably be less stressful! I hope that in time you will be able to say to people "look how well my child is doing now that they have the right support", with your head held high because you know you were right to fight as this stage.

    Mind you no doubt you will probably get a responce from some people like "well i did tell you they would grow out of it!" lol! I have had that said to me when they see my 16year old sitting calmly reading a book, i feel like screaming he is reading the book because he cant interact with you, he doesnt know you!

    Oh dear starting to rant! will go now.

    Remember smile and nod at thoese who dont understand , talk and cry with thoese that do understand.

    Sam

    x

     

     

     

Reply

  • Hi all,

     

    I know what you mean oatie, I know several people who dont spend much time with my kids and still maintain that there is nothing wrong.

    Thats CAMHS refering my youngest for formal testing, I still dont know if im doing the right thing but i think it is neccesary before he starts secondary to know for sure what challenges he has. He is very different from my eldest but im trying to remember its a big spectrum and he could be on it in a very different way.

    I agree that the united nations job would probably be less stressful! I hope that in time you will be able to say to people "look how well my child is doing now that they have the right support", with your head held high because you know you were right to fight as this stage.

    Mind you no doubt you will probably get a responce from some people like "well i did tell you they would grow out of it!" lol! I have had that said to me when they see my 16year old sitting calmly reading a book, i feel like screaming he is reading the book because he cant interact with you, he doesnt know you!

    Oh dear starting to rant! will go now.

    Remember smile and nod at thoese who dont understand , talk and cry with thoese that do understand.

    Sam

    x

     

     

     

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