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hi everyone

jakethesnakesmum

Hi Everyone

 

I am Amanda and mum to 3 kids, one with autism, although i am certain my other 2 have something wrong too.  I'm not too sure how i feel or what i am doing so thought i could find some solace with other parents in the same position.

 

We always knew there wasn't something quite right with Jake, now 6, he didn't make eye contact or weight bear as a toddler and only started to walk after intense physio when he was 2, he didn't talk til he was nearly 4 and relied on Makaton. About 2 years ago he was diagnosed as Autistic and Dyspraxic which i immediately accepted and seeked the help he needed although tbh we have been very very lucky with all the support Jake has had and i feel very confident that without it he would be a very different little boy today.  My problem lies with the school.  They are very good with him but always telling me he's fine at school so must be something i am doing and they are not sure of his diagnosis (despite having a statement at 2) but then when the annual review comes round they say they have broken the budget as he has been needing extra support to deal with his anxiety !?! Whenever i feel like i need to find extra support someone convinces me he's fine and it's all in my head - does anyone else experience this from teachers or well meaning friends and family? We've got to a point now where i can't cope with his outbursts and moodswings. He physically attacks us when he doesn't get his own way and is always screaming and running off. I just need to feel that i am not alone or a bad mother.  I could rabbit on for ages but don't want to scare you all off.

 

I hope there is someone who recognises themselves in this and can help me before i lose my mind.  I didn't realise how down this is getting me until today when i realised just how hard i work to appease him.  I love him dearly and wouldn't swap him for the world but its so hard sometimes. My youngest daughter is only 17 months younger than him and is exactly the same - almost worse - but i can't get help as the school refuse to accept there is anything wrong (despite being on school action plus!!)

Anyway would love to speak to other parents if i haven't sent you all running. Thanks for taking the time to read this.

Amanda xx

 

Parents

  • Hi Jakethesnakesmum and SamF

    On behalf of everyone on the forum I would like to welcome you both.  There are so many people on the forum who will be able to understand exactly where you are coming from and the situations and concerns that you have.  So many of us are parents of children with AS or have AS themselves.  Hopefully you will be able to gain invaluable support from people who are going through what you are going through or have been there and have amazing advice to give.  Those with AS provide an amazing insight in to the world from an AS point of view, something that most of us have no idea or understanding about and which enables us to have a small understanding of their day to day life.  The forum is here to provide support, make you laugh (and some times make you cry) and is a great place for a "rant" if that is what makes you feel better.  Please continue to post so that we can help in any way that we can

    Take care

    ColinCat

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  • Hi Jakethesnakesmum and SamF

    On behalf of everyone on the forum I would like to welcome you both.  There are so many people on the forum who will be able to understand exactly where you are coming from and the situations and concerns that you have.  So many of us are parents of children with AS or have AS themselves.  Hopefully you will be able to gain invaluable support from people who are going through what you are going through or have been there and have amazing advice to give.  Those with AS provide an amazing insight in to the world from an AS point of view, something that most of us have no idea or understanding about and which enables us to have a small understanding of their day to day life.  The forum is here to provide support, make you laugh (and some times make you cry) and is a great place for a "rant" if that is what makes you feel better.  Please continue to post so that we can help in any way that we can

    Take care

    ColinCat

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