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Two on the spectrum

FrustratedMummi

Hi folks.

My son was diagnosed with severe high dependancy autism 2 years ago (aged 5) and my daughter was examined 4 years ago but was borderline, now with the push to diagnose girls who tend to be a little more difficult to spot today I was informed that our CAHMS department has come to the decision to diagnose her with Aspergers but also requested that they can investigate concerns they had that she also had ADHD - The issue I have is that my daughter (who is 9) was present for this entire conversation and when the specialists asked her if she had any questions or thoughts she sat there quietly and simply shook her head, but when we were getting on the bus my daughter suddenly started getting very upset and asking me what it meant, what was wrong with her, did she have to leave her school now and go somewhere special like her brother is doing in September?

All of this just kind of knocked me off my balance, life has been very challenging for us, I am a single mother, I have clinical depression and Aspergers too, I don't have many friends and now I'm living and coping with 2 children who are also on the spectrum, who tend to be either a trigger for each other or a rock for each other when I cannot be and now I have my daughter asking me all these questions that I am stumped to answer. The only reply I could give her was: "You are still you, nothing has changed, we just know how best to help you at school now" but she looks at me like my answer isn't good enough and she has to know more because she doesn't understand.

Can anyone help me?

Parents

  • I am not surprised having experienced this first hand with my eldest when he was diagnosed.  I had not mentioned my self diagnosis to him in case I was wrong, yet the psychologist just blurted it out and I left with the very confused frightened boy who, needed lots of reassurance.

    I have also found gp's to be just as thoughtless and tactless, often having to reassure my son's afterwards, as even though they know  my son's have asd they still make stupid comments like "you're how old.. you don't need ...."  quite often belittling them.  Sadly a lot of gp's have very little autism awareness, so we end up picking up the pieces..

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  • I am not surprised having experienced this first hand with my eldest when he was diagnosed.  I had not mentioned my self diagnosis to him in case I was wrong, yet the psychologist just blurted it out and I left with the very confused frightened boy who, needed lots of reassurance.

    I have also found gp's to be just as thoughtless and tactless, often having to reassure my son's afterwards, as even though they know  my son's have asd they still make stupid comments like "you're how old.. you don't need ...."  quite often belittling them.  Sadly a lot of gp's have very little autism awareness, so we end up picking up the pieces..

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