Coping advice and support

Hi,

My Daughter is currently trialing ADHD meds, and once responding well, she will be assessed for ASD. 

However, I really do need support now. I am struggling so much managing the meltdowns. She is biting herself, throwing herself down stairs, ripping her hair out, scratching her face and pulling really hard on her ears. She has threatened to throw glass cups around the kitchen, she is throwing big, heavy objects, and much much more, and I really dont like that my 3 year old is witness to this, as she is genuinely scared and worried during these times. 

During meltdown, she cannot listen to reason or process any information, so talking or communicating with her during these prove really challenging. She suffers really bad with anxiety and questions me all day long if she is going to be fine/is she going to be ok. She must tell me everything she or her body has touched, to make sure she is ok. She is washing her hands frequently and has used a 500ml bottle of hand sanitiser in a few days. 

As soon as I heard the community paediatrician say Autism, I think I just broke down. Ive not stopped crying. I feel guilty, I feel like Im lost in an unfamiliar world, I feel like im never doing enough to support her. Our bond has been damaged over the last few years due to meltdowns, which i am making positive steps now to help to mend. I really just want to crawl inside her brain and understand what is going on, to cuddle her brain and make it all ok for her. Im really, really down. 

Please, any tips on supporting us would be gratefully received. 

Parents
  • Hi, I was taking through the internet to find advice on coping with my own daughter when I saw your message. I can relate! How old is your daughter? 

    mine started having difficulties at the age of 10 pet much out of the blue although she always had meltdowns now and then. We moved house and things escalated very quickly, school refusal, social withdrawal etc at that time she was scratching at herself pulling her hair etc. we got a diagnosis about a year after that. She has been managing well but moving into year 8 at school has suddenly had a huge regression and is back to massive anxiety and meltdowns. Its hard REALLY hard. We have learnt to not engage when she’s in that state as there’s nothing you can do, it seems harsh but we try to stay calm and nearby just to make sure she’s safe but when she’s screaming help me repeatedly for 20 minutes it’s mentally very challenging and upsetting. We can’t touch her or advise her she is in her own world. 

    it can be a very lonely place as a parent as no one understands, I’m so sorry that your going through this as I wouldn’t wish it on anyone 

Reply
  • Hi, I was taking through the internet to find advice on coping with my own daughter when I saw your message. I can relate! How old is your daughter? 

    mine started having difficulties at the age of 10 pet much out of the blue although she always had meltdowns now and then. We moved house and things escalated very quickly, school refusal, social withdrawal etc at that time she was scratching at herself pulling her hair etc. we got a diagnosis about a year after that. She has been managing well but moving into year 8 at school has suddenly had a huge regression and is back to massive anxiety and meltdowns. Its hard REALLY hard. We have learnt to not engage when she’s in that state as there’s nothing you can do, it seems harsh but we try to stay calm and nearby just to make sure she’s safe but when she’s screaming help me repeatedly for 20 minutes it’s mentally very challenging and upsetting. We can’t touch her or advise her she is in her own world. 

    it can be a very lonely place as a parent as no one understands, I’m so sorry that your going through this as I wouldn’t wish it on anyone 

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