Reassurance and advice needed please!

Dear all,

I am new to this forum and in fact this is the first time I have ever used a forum so please bare with me!

Myself and my partner have a beautiful 3 year old who has had a number of issuea since birth. He was born early by 7 weeks and this seemed to impact on his general health and development. He spent his first 2 years in an out of hospital. He had feeding difficulties and as such had SALT involvement. She ended up referring him to the community peaditrician the reasons for this is because she felt there were some delays.

The paediatrician stated that he was delayed in some areas and referred him for portage. After his first birthday there seemed to be some improvement he walked at 16 months and started interacting more so by the time portage visited it was felt he would not need there support, however they kept him on the waiting list.

Aa his health started to improve we noticed other issues like his ability to remember things such as car logos and his fascination with television adverts and anything to do with BT Broadband would you believe! In addition he never really played with toys or other children and there were some differences. When portage visited the 2nd time it was decided to give him some extra support.

His behaviour currently is completely non consistent. Sometimes he appears to be completely "locked in" to his own world and is only concerned with his own agenda and will just run (he does not walk') to one thing to the next singing repeatedely the same line from a song or making noises. This is just an example of how he behaves. He is also terrified of certain noises and is completely hyperactive with a very small attention span for anything not of interest to him. He becomes completely obsessed with things and you cannot move him on from this. More recently he cannot even sit to eat his dinner which is really worrying me. In aedition he has hardly any sleep as he cannot settle or stay awake.

He haa beem diagnosed with "communication difficulties" and is having support. He will  Start a pre school in sept for children with additional needs.

I am do confused though because sometimea he can appear quite "normal" and interreacts in a "normal" way. He is so friendly and always says hello to people and his eye contact is good. He has just started to answer questions which he was not doing before and although some of his behaviour is consistent with ASD others are not. I am just so confused and struggling to know what if anything I need to push for or if I need to be saying "no he is fine" and see how we get on. He is constantly described as a "mixed picture" and I just do not know myself which I am finding hard. Is he just naughty in which case I need to come down hard on the behaviour.

His behaviour is very challenging particularly because he doea not sleep. he cannot be left alone for a minute because he is very accident prone and he cannot do much for himself. Do childrem with ASD have issues with hyperactivity?

I don't really know what I'm asking! I just need someone to relate to my situation of a "mixed picture" any support, advice or anything would be much appreciated.

Thanks for reading  

Parents
  • Personally I would press for a diagnosis.  As you say you don't know if he is being naughty or has underlying issues affecting his behaviour.  Until such time , if I was you,  I would document all his behaviour and then when you see the experts you can say he does xyz at home, but not at xxxx home why is that?  Try to identify as many questions that you need answers to, this will help you understand your son's triggers and how to deal with them 

    're sleeping my son's when they were younger has weighed duvets as they liked feeling snuggly, one liked to listen to ocean wave sounds and had a, night light.  The other liked lavender scent on his pillow and loads of soft toys.  A warm bath and a favourite story were a must.  Even then I had to stay with them until they fell asleep, so maybe the ocean waves sounds were more for me as I really enjoyed bed time.

Reply
  • Personally I would press for a diagnosis.  As you say you don't know if he is being naughty or has underlying issues affecting his behaviour.  Until such time , if I was you,  I would document all his behaviour and then when you see the experts you can say he does xyz at home, but not at xxxx home why is that?  Try to identify as many questions that you need answers to, this will help you understand your son's triggers and how to deal with them 

    're sleeping my son's when they were younger has weighed duvets as they liked feeling snuggly, one liked to listen to ocean wave sounds and had a, night light.  The other liked lavender scent on his pillow and loads of soft toys.  A warm bath and a favourite story were a must.  Even then I had to stay with them until they fell asleep, so maybe the ocean waves sounds were more for me as I really enjoyed bed time.

Children
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