Teenage mental health and weird behaviours

I have a 17 year old son with adhd & ASD that went through autistic burnout 3 years ago. However he has some behaviours that we just do not know how to help.

number one, certain words he despises and will scream if he hears. To the point we have had to cut them from our own vocabulary. At the moment these words are kill, die & summer. 

number two blue skies. He walks around with his head lowered during daylight to avoid seeing any blue sky. He is on high alert all day until it’s dusk. 

number three screens. Since his breakdown he will not look at any screens. So no tv, no iPad not even digital clocks. Also no music incase he hears the bad words. 

we have tried the go, no help. We tried CAMHS no help. He was even refused a paediatrition appointment. 

so for the past 3 years we live day by day in a house where the curtains are never open, we watch tv or listen to music in different rooms, with no help from anywhere.

As you can imagine our life is pretty non existent and revolves around our son

Csn anyone offer any advise at all? 

Sorry we really are out of wits end now

Parents
  • I am sorry to hear your household is experiencing those hurdles to a more relaxed atmosphere and lifestyle.

    I wondered if one or more of these resources might be able to offer information and assistance to your family:

    https://www.autism.org.uk/advice-and-guidance/help-and-support/parent-to-parent-helpline

    https://www.youngminds.org.uk/parent/parents-a-z-mental-health-guide/adhd/#ADHDinteenagersandbeyond

    https://www.mind.org.uk/for-young-people/

    I am not a medic and our rules here are suitably strict about not giving each other medical advice or diagnoses.  That said, if I were in your / your son's place; there are 4 question themes, ideally, which I would have hoped to explore with support of a GP (or via their onward referral to a suitable NHS expertise team):

    - would there be any access available locally to any talking therapy service? (to help your son to learn to better understand the series of events, stressors, pressures or triggers which combined to contribute to his last burnout),

    - are there potentially any medication interactions, contraindications, or side effects, which might be contributing to your son's experiences and concerns?,

    - does the GP (or other NHS Team) feel confident there are no other underlying physical health, or mental health, conditions which might be complicating matters for your son?

    - would a referral to the local authority social services needs assessment be appropriate for your son? (local authorities have a duty to assess 16 and 17-year-olds who appear to need care and support if the young person is facing challenges which impact their well-being to the extent that they appear to need more care and support beyond that required by the average young person).

Reply
  • I am sorry to hear your household is experiencing those hurdles to a more relaxed atmosphere and lifestyle.

    I wondered if one or more of these resources might be able to offer information and assistance to your family:

    https://www.autism.org.uk/advice-and-guidance/help-and-support/parent-to-parent-helpline

    https://www.youngminds.org.uk/parent/parents-a-z-mental-health-guide/adhd/#ADHDinteenagersandbeyond

    https://www.mind.org.uk/for-young-people/

    I am not a medic and our rules here are suitably strict about not giving each other medical advice or diagnoses.  That said, if I were in your / your son's place; there are 4 question themes, ideally, which I would have hoped to explore with support of a GP (or via their onward referral to a suitable NHS expertise team):

    - would there be any access available locally to any talking therapy service? (to help your son to learn to better understand the series of events, stressors, pressures or triggers which combined to contribute to his last burnout),

    - are there potentially any medication interactions, contraindications, or side effects, which might be contributing to your son's experiences and concerns?,

    - does the GP (or other NHS Team) feel confident there are no other underlying physical health, or mental health, conditions which might be complicating matters for your son?

    - would a referral to the local authority social services needs assessment be appropriate for your son? (local authorities have a duty to assess 16 and 17-year-olds who appear to need care and support if the young person is facing challenges which impact their well-being to the extent that they appear to need more care and support beyond that required by the average young person).

Children
No Data