Hi, wondering if anyone else has a siminlar experience.
My daughter is 16. She has spent 2 and half years under camhs for an eating disorder with little to zero positive outcome. They labelled her as anorexic but she has never responded to 'treatment'. We always felt it was more in line with arfid. She has been on the waitlist for the neurodevelopmental team for 18months to 2 years (my son is 5 years into a wait for adhd assesment) and we were advised by nhs staff to take her for a private assement. She had a recent stay in hospital for refeeding before she turned 16 and the experience of being in hospital was awful for her.
We went through the private assesment after borrowing some money from a family member and the diagnosis is of autism. I feel she also shows adhd and ocd traits but she masks so highly it is difficult for those who dont know her to see.
She is really very angry about the diagnosis and feels as though her life is over. We are very neuroaffirmative but she has taken this really hard. She is a high achieving perfectionist who has struggled in secondary school socially and has lots of rules that she must follow, ones that she does not always share. We felt a diagnosis may help with undestanding herself as she is so hard on herself all the time about not being able to share how she feels or why she can't eat but it seems to have made her feel even worse. I am not sure how to best approach this with her.
