desperately needing help

Hey All,

Ill try and keep this short, LO is 9 going on 10, under consultation for ADHD and inline for an ADOS assessment, I have a gut feeling that he has PDA.

He is currently in year 5 and is starting to talk about going to high school, where he said he will have no friends, as he's going to a different high school than the rest. His behaviour has escalated, in the sense of harming himself, and not being nice to his school friends, his attitude sucks as well here at home. why don't you do it, when asked a simple task. 

His bedroom routine, is usually me singing a song 3 time, but this has escalated to 12, and then half an hour later can you sing it a further six times clearly hes worrying or something is up with him,, but can't identify what it is. I've told him on several occasions, that this is the last one, however he will come down crying saying he can't sleep, and he can't he won't sleep till 10pm, if not longer if it isn't sung.

I spoke to CHAMS and they suggested Thrive, been there and they said because of possible diagnosis, they can't help due to neurodivergent. 

How do People parent this, I feel completely lost and crap mummy!!!

Parents
  • whilst we are still awaiting the diagnosis which is taking forever afhd has been 3-4 year wait, autism will be another 2 years

    If you live in England, you might like to ask your GP about getting him re-referred using the Right to Choose pathway (RTC), which you are entitled to use instead if you wish.

    In England (only), this enables access to certain, approved, private autism assessment providers who typically have much shorter waiting lists than the NHS, but with the referral and assessment still fully funded by the NHS. 

    I was on an NHS waiting list for two years before I learned about RTC and switched to it (on the recommendation of an NHS psychiatrist). My assessment and diagnosis then followed just four months later.

    Some examples of RTC providers are listed here, along with further explanation.

    More information:

    NAS - How to request an autism assessment

  • Thank you for this ill have a look. I also gave had a look at the links you have sent me too 

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