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School advised daughter likely autistic but should not get her tested

Swimswim

Hi,

I'm hoping to hear other people's advice and personal experiences please. My daughter is 7 and is showing more and more autistic traits. She struggles socially at school,  preferring to spend time on her own. She cannot cope with changes in routine, and it results in massive meltdowns if there are the the tiniest changes. There's more, but I'll keep the post brief.

At a school SENCO meeting about her sibling the SENCO mentioned that my daughter could be Autistic, but advised that getting a diagnosis may be harmful for her. She is incredibly intelligent, working at roughly the level of an 8-9 year old despite only bring 7, and the school SENCO was concerned that a diagnosis would only hold her back in the future if she were to face stigma because of it. She explained that my daughter clearly does not need any academic support due to her autism, and she did not feel that she would get any benefit from a diagnosis with her emotional and social needs.

I would love to hear other people's advice and experiences please, as parents or people with Autism. Thank you

Parents

  • My experience with my son was struggling to get school to agree to our suspicions which made it harder to get to the stage of diagnosis so the fact that they suggested it is positive.

    If you seek a diagnosis the waiting list is long, so it is good to get on it early, especially as often Secondary school can be a challenge. Having a diagnosis means you can ask for adjustments to help manage school if needed. Only school staff need to know. My son chooses not to tell peers. It might also be helpful later on in work, if there is a need for reasonable adjustments.

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  • My experience with my son was struggling to get school to agree to our suspicions which made it harder to get to the stage of diagnosis so the fact that they suggested it is positive.

    If you seek a diagnosis the waiting list is long, so it is good to get on it early, especially as often Secondary school can be a challenge. Having a diagnosis means you can ask for adjustments to help manage school if needed. Only school staff need to know. My son chooses not to tell peers. It might also be helpful later on in work, if there is a need for reasonable adjustments.

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