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Recently diagnosed

Luna Lovegood

My son has been very recently diagnosed with ASD. He is high functioning in some areas (maths teachers love him but the English teacher is tearing her hair out). can any one give any advice on what to do next. I know the school has been written to but I'm not sure what my expectations should be from them. My son has struggled all the way through school with 'the chaotic classroom' and lessons like art, drama and languages where there is a lot of group work and discussion have been an area of difficulty for him as have supply teachers (in fact they take him out when there is a supply and put him in inclusion). He needs to get out of the room when he gets overloaded particularly if a teacher starts shouting and he has previously been suspended from school for 'assault on an adult' when he has barged past in his desperation to get out of the room. This was in his previous school and the school we have him in at the moment have been a Lott better with him. 

  • We have had the opposite experience. The primary school was unhelpful (to say the least) but the secondary school have been really supportive. They've put support in place already and have offered to reassess following the recent diagnosis. I'm not sure what to expect or how much I can reasonably ask for. I'm guessing that having a diagnosis doesn't automatically mean a statement and that I still have some more work to do. I know that ABRSM will allow extra time during music exams and make allowance for ASD sufferers who find it stressful  coping with unfamiliar people and places (definitely an issue for us). I also that it is possible to get extra time in GCSE exams and also for the exam to be sat in a 'safe' place which is normally a small room with fewer people and familiar faces. My son really hates chaotic situations and unfamiliar situations and has a get out of class card for when he can't cope. I've heard of this being given to other children as well but I worry that they don't use ibe either because they don't want to draw attention to themselves or because they lack sufficient self awareness to recognise the signs of not coping.

  • My daughter is also 13.  She had a very good primary school experience and her first high school was good but then I moved to be closer to family and the high school she is now registered with have been rubbish.  Its huge (1800) and they have mixed ability classes which hasn't worked for my daughter.  Also, she was observed to be fine because she was good at hiding how terrified she was.  They said she was always smiling but I saw that smile when I took her back for a meeting and it was like something from a horror film.  How they never spotted it, I don't know.  She stopped going in November and I'm fighting the LA to get her statemented and for some appropriate education.  I've been lucky that the Learning Centre now have some involvement and they've got her doing two afternoon and a morning of activities which gets her out of the house.

  • Hi

     He is 13.  the school he is in now is supporting him well and I'm generally pleased with them. The primary school were really unhelpful. I'm interested to hear what you say about your daughter. How old is she? I also have a daughter. She doesn't have ASD but I recognise what you are saying about wanting to read pre school books and preferring facts. My daughter is the same. I'm wondering now if she does have some traits.

  • Hi Luna

    How old is your son?  The current school sound as though they are working well with him?  My daughter was diagnosed in March but unlike your son, doesn't get Maths at all.  She's a little better with English in that she reads and spells well but move away from fact and she struggles.  She'd rather read a picture book for pre school than a fiction book aimed at her age group.