Nine year old says she doesn't want to live, school regressing

Our 9yo daughter has been saying she wants to die and questioning the point of life for about a year, and while it's very distressing to hear, I don't think she'd ever act on it. Outside of school she's generally pretty happy and laughs and plays with her best friend almost every day.

However, school has been a problem since year 2. We moved her midway through year 3 from a state primary, where she was desperately unhappy, to a much smaller private school that has a good reputation for SEN. Initially she was happier, then many similar problems began to emerge, particularly around the playground and socialising with other kids. This term seemed to be better until last week, when we got her autism assessment. She appeared comfortable with the diagnosis, but her fear of school has now rocketed back to the bad old days. Often she tells the teachers she can't breathe and has stomach pains. She won't accept the explanation that it is anxiety induced, and will shout at me for not caring that she is 'ill' (and should be let off school). I don't think there's any problem with bullying and the teachers seem very caring, plus she's now allowed to have fidget toys and sit and read outside the playground during breaks.

She says other kids don't want to play with her or ignore her, but until now she's usually been invited to all the birthdays and everyone she asks comes to hers (although she largely ignored them all to play with her best friend)...so I'm not sure that's the case. A consistent theme at both schools has been her saying she doesn't like the games other people are playing and they don't want to play hers. Another recurrence is fibbing, making up stories about things she's done or said. I've told her she doesn't need to try to impress me and that she shouldn't fib as it becomes hard to know when to take her seriously, but to no avail.

I feel most of her problems come down to low self confidence, so does anyone have any suggestions about activities, therapy or anything else that could help her? Academically she's doing okay apart from maths (which is its own psychodrama), but we've more or less given up on extra-curricular stuff. She doesn't really show any interest in anything except computer games and while she will try new things, she gets frustrated if she can't do them immediately, declares herself rubbish, and quits. She does like dancing, but again only on her own terms and not under instruction or a class.

  • Dear Lapta,

    Thank you for posting and telling the community what you are going through. We are sorry to hear that your daughter is currently experiencing suicidal thoughts.It is good that you’ve let us know what’s happening

    It’s very important to tell someone about your daughters feelings or thoughts of suicide. Call your GP and make an urgent appointment. Your GP can make sure you get appropriate help and support . 

    The National Autistic Society does not currently operate a crisis or emergency service. We advise you to contact 999 or any of the mental health crisis lines listed on our Urgent Help Page if you or any of your family are at risk of immediate harm:https://www.autism.org.uk/what-we-do/help-and-support/urgent-help 

    If you or your family are not at immediate risk of harm, we would encourage you to speak to your GP or another health professional about this if you haven’t done so already. If it’s outside your GP hours call 111 to reach the NHS 111 service. In England, Wales and Scotland there is now an option to speak with mental health professionals by selecting ‘option 2’ when calling NHS 111:https://www.nhs.uk/nhs-services/urgent-and-emergency-care-services/when-to-use-111/ 

    Support services that may be helpful for your daughter

    You may also find the following useful:  

    If you are interested in counselling (NHS & private), you may like to have a look at the Autism Services Directory: https://www.autism.org.uk/directory under ‘Health & Counsellors’. 

    This guide produced by NAS may be of interest. It collates suggestions on ways professionals can make mental health talking therapies better for autistic people.   

    Content note- the guide contains sections on suicide and self-harm: Good practice guide for professionals delivering therapy 

    We hope this is helpful to you.  

    Kind regards 

    Rosie Mod  

  • That's a good question re the fibbing...I don't really know. Yesterday she was adamant she doesn't fib any more, but when I gave her some recent examples she said that if she didn't fib she would have nothing good to say about herself

    With school she definitely wouldn't go in given the choice, though on the few times we have let her skip she's got bored very quickly.

    At different points she has given various reasons for not liking it. Usually it's about socialising, but she's also said she doesn't like being away from us, that she's bad at everything in class or this or that teacher doesn't like her

  • Thanks, that's a idea worth pursuing

  • Is she fibbing, or does she believe what she is saying?

    She may create fantasy scenarios in her head, in order to prepare as part of masking, and then get confused about which one actually played out in real life.

    If you let her stay off school would she actually want to, or is it a game to try to have control. If she was able to choose, so there was no pressure, would she go?

    Have you asked her what is making her so anxious? She'll be nervous or intimidated by something, maybe just fear of having to answer a question or say something in class, maybe of making a mistake or looking foolish, or having people look at her. Maybe it is using the toilet, or the food or drinks, or just sitting still.

    I guess she feels different to most of the others so does not want to engage which is making her feel isolated.

  • I‘m sorry to hear about the struggles your family are going through. I can’t imagine how scary it must be to hear a loved one say such things.

    One thing I can say is that art therapy is a form of therapy that we often forget is an option. My daughter (age 7) and I have both attended art therapy and we both loved it. C was able to express herself in ways that she found immensely satisfying, and I found it to be a little easier to facilitate talking when my therapist and I did art in parallel.