Unmasking aged 8

Hello,

We are currently awaiting an assessment for autism/ASD for our 8 year old daughter. As she was growing up we noticed a few little things that we just thought made our darling daughter unique and when we reached out to the school they reassured us all was fine and nothing unusual. 

About 6 months ago she became very upset leaving me and going into school. It transpired that she was struggling with close contact with other children at school and the noise. The mask began lifting....she would come out exhausted and since then we have begun to understand just how difficult hiding her discomfort (mainly sensory) has been for her. Her behaviour has changed and each day we see her challenges more and more.

We are doing all we can to support her and I hope by having the diagnosis we can get more support for her and help her understand her amazing brain, which she has already said makes her different from others her age.

Has anyone experienced a rapid unmasking? I don't know why but I always thought it would be gradual. It has left me feeling like our life has changed almost overnight as we learn to navigate this new world. Part of me feels foolish as I always felt deep down that there was something there. 

It sounds awful but in some ways I feel I am grieving for the future I thought she would have and we would have with her. 

I would love to hear from others that may have experienced something similar. Obviously I love my daughter and know with time we will know how best to navigate things and she will have a wonderful life, but at the moment I feel like I am at sea.

Many thanks x

Parents
  • Hi, it is a lot to deal with when it starts to dawn on us that a child has a significant issue like autism. When this happened with us I knew so little about autism - looking back now (both my children are in their 20s now) I can remember feeling quite desperate at times as I tried to navigate dealing with school and trying to get help for my youngest son. He developed Selective Mutism when he started primary school - but wasn’t diagnosed with autism til he was 10 years old. 
    It can feel overwhelming. I think the key thing to keep focus on is listening to you child - tuning in to their experience and what they are saying they need to help them to cope with school. School life can be incredibly challenging for autistic children - it’s so intense: so many people, so many pressures and demands on you, so much sensory input. This can put an immense strain on your child’s mental health (and consequently a lot of strain on your mental health too). 
    I would say: concentrate on what is good for your child’s mental health and happiness TODAY. Try not to get too caught up on looking ahead to what your daughters life will be like in the future - because you have absolutely no idea about that whatsoever  it’s pointless to dwell on that now and it’s only adding to your stress. It’s not helping you or your daughter to start engaging in that. Focusing on her health and happiness now is the concrete thing you can do now that will ultimately improve her future anyway. 
    If it’s any comfort both my children were eventually diagnosed with autism, one is now doing a PHD and one struggled academically - so every person with autism is different and predicting their future life and achievements is not something you need to do at this point. Both my children are an absolute joy to be around and I am so incredibly proud of both of them. I wouldn’t ’take away’ their autism if I could - because it’s an intrinsic part of who they are - and I love who they are! Embrace your daughter’s autism diagnosis - because it’s a big part who she is. Don’t waste time and energy ‘grieving’ - celebrate your daughter on every level of who she is. She’s facing a lot of challenges in coping with school - I can’t overstate that enough - so be proud of her for trying to do that, because trust me it can take an immense amount of courage and strength for an autistic child to get through the school day. It’s hard and im sure she’s being really brave to face that every day. She needs you support and unconditional love for her to be able to navigate all she is having to cope with now. Mainstream schools are not well designed for autistic pupils. She needs you. Drop all your expectations of what ‘a wonderful life’ (as you put it) might be for your daughter - no one’s life is always wonderful after all! Just focus on her day to day happiness now :) 

Reply
  • Hi, it is a lot to deal with when it starts to dawn on us that a child has a significant issue like autism. When this happened with us I knew so little about autism - looking back now (both my children are in their 20s now) I can remember feeling quite desperate at times as I tried to navigate dealing with school and trying to get help for my youngest son. He developed Selective Mutism when he started primary school - but wasn’t diagnosed with autism til he was 10 years old. 
    It can feel overwhelming. I think the key thing to keep focus on is listening to you child - tuning in to their experience and what they are saying they need to help them to cope with school. School life can be incredibly challenging for autistic children - it’s so intense: so many people, so many pressures and demands on you, so much sensory input. This can put an immense strain on your child’s mental health (and consequently a lot of strain on your mental health too). 
    I would say: concentrate on what is good for your child’s mental health and happiness TODAY. Try not to get too caught up on looking ahead to what your daughters life will be like in the future - because you have absolutely no idea about that whatsoever  it’s pointless to dwell on that now and it’s only adding to your stress. It’s not helping you or your daughter to start engaging in that. Focusing on her health and happiness now is the concrete thing you can do now that will ultimately improve her future anyway. 
    If it’s any comfort both my children were eventually diagnosed with autism, one is now doing a PHD and one struggled academically - so every person with autism is different and predicting their future life and achievements is not something you need to do at this point. Both my children are an absolute joy to be around and I am so incredibly proud of both of them. I wouldn’t ’take away’ their autism if I could - because it’s an intrinsic part of who they are - and I love who they are! Embrace your daughter’s autism diagnosis - because it’s a big part who she is. Don’t waste time and energy ‘grieving’ - celebrate your daughter on every level of who she is. She’s facing a lot of challenges in coping with school - I can’t overstate that enough - so be proud of her for trying to do that, because trust me it can take an immense amount of courage and strength for an autistic child to get through the school day. It’s hard and im sure she’s being really brave to face that every day. She needs you support and unconditional love for her to be able to navigate all she is having to cope with now. Mainstream schools are not well designed for autistic pupils. She needs you. Drop all your expectations of what ‘a wonderful life’ (as you put it) might be for your daughter - no one’s life is always wonderful after all! Just focus on her day to day happiness now :) 

Children
No Data