ASD and OCD

Our 12 year old ASD daughter is really struggling with OCD type behaviours. She has increasingly been saying things are dirty then she will never use them again, demand they are washed or thrown them in the bin. Even things that are really precious to her like her new school pencil case. She is obsessively cleaning her hands and having showers too.  

We paid to see private psychiatrist in February and her advice was we need to nip any of these behaviours in the bud, as there is a big risk here that it will spiral and more and more things will be classed as dirty. So don’t agree to washing things and don’t enable the obsessive thoughts. Well it has really spiralled and she now thinks that me (her mum) and her younger brother are dirty. She won’t let me prepare her food etc. She is so distressed when we try and suggest to her that things are not dirty and don’t need washed. She is clearly keeping a running list of what she thinks is contaminated and it must be so exhausting for her. 

Has anyone else been through something similar? Or has any advice? 

She is on waiting list for CAHMS but hasn’t got appointment until end August (2 year wait so far). We have had to call 111 a couple of times as she has been so distressed and refusing to come out of the shower and I can see that will only get more frequent. 

Many thanks

A struggling mum

Parents
  • Do you know if there has been any kind of trigger?

    When I was younger we had a lesson in school about germs. From that point I was a pain about things being dirty or clean.

    It took years for me, but I think the thing that got me over it I think was learning more about the immune system. I realised dealing with germs in smaller doses is good. It lets our bodies learn about them so it can fight them off quicker in future, and stop us getting as sick.

    That specific explanation might not work. My point is more that there might be a trigger to identify and work on, rather than trying to work directly on the behaviour.

  • Thanks for the quick response. She shuts down when we ask her why she is doing it so we are really not sure what the trigger has been. I do think she has been exposed to a lot of ‘germs are bad’ with being part of the Covid era. We will definitely try and explore this more with her  Thank you  

    She started high school in August and it all seems to have started from there. Her social anxiety is through the roof and it such a challenging time for her. I don’t know if the contamination rules are something she can control, in a world that is maybe feeling really out of control for her.

Reply
  • Thanks for the quick response. She shuts down when we ask her why she is doing it so we are really not sure what the trigger has been. I do think she has been exposed to a lot of ‘germs are bad’ with being part of the Covid era. We will definitely try and explore this more with her  Thank you  

    She started high school in August and it all seems to have started from there. Her social anxiety is through the roof and it such a challenging time for her. I don’t know if the contamination rules are something she can control, in a world that is maybe feeling really out of control for her.

Children
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