Suspected autism - nearly 4 year old seems traumatised by nursery. What do I do?

My 3.7month old is suspected neurodivergent/we’ve had several people suggest autism (however I don’t know enough to definitively say). We’re on a waiting list for a paediatric assessment. 

when she was 1-2 she attended nursery and seemed ok at the setting. She had some usual drop off tears but nothing too dramatic. 

since she turned two she’s developed some very obvious dislikes/distress for certain social setttings. Other children seem to upset her in large groups or if they attempt to engage with her.  Usually if places are very busy she can get overwhelmed, also if we go somewhere and she’s been shut in or it’s unfamiliar. 

we’ve had another baby and now she’s got some very serious attachment to me and her sister. She can even get really upset when I put her sister to bed, when I’m putting her down for a nap etc. I also can’t leave her anywhere, at all at the moment. 

we have been trying to find a suitable setting again for her for around a year and due to her being so attached to me and also her upset at new environments it’s becoming so so difficult. 

the first nursery encouraged us just to leave her and she’ll get used to it. This lasted about a month for a few hours a couple of times a week and I decided to pull her out. She was screaming on the floor for around an hour most days being left to soothe herself really. And by the time I picked her up some days she was completely zoned out and didn’t even notice me in front of her for a moment or two. She wouldn’t eat/drink whilst there or let people near her. 

I tried an outdoor, nature setting with two childminders who were made fully aware of the situation. They informed me they have other children who have asd, one being non verbal children and nothing phases them. I bought all the kit, talked it up to my daughter….Push came to shove and they told me to go but stay nearby on the first day because it would help. She became utterly hysterical trying to escape. My understanding is that the door to the hall way wasn’t secure and she ran through it near the dog. They then bodily lifted her while she was having a full blown meltdown into another room for safety reasons. They watched her for 30 minutes and then told me she couldn’t come back because they think she’s autistic and it’s a health and safety issue if there was a fire. Also said some questionable things about people on the spectrum. It was all really upsetting and just further distressed my daughter, causing more upset about being left. 

I have been trying to get my nearly 2 year old into a setting to give some relief in the week so I can still work 2 days a week and to give my eldest a morning a week with me and her to go swimming (adores it). I’m hoping this helps boost her independence again away from her little sister. So she can see it’s still fun without her. 

my question is what do I do next? I’m at a loss. Even on nursery visits for my little one she’s been utterly distraught. It’s like she’s traumatised and I just have no idea if I should be trying to go a different route, if I’m holding her back by not trying to be more forceful with it. I’ve got no support or knowledge on how to handle this and the last thing I want to do is to keep forcing her into something that’s making her so upset. 

is there anyone who has been in a similar situation that has handled it well and has some advice?? 

thank you so much. 

Parents
  • I hated being in groups of people as a child, they were always so loud and seemed to know each other and the rules of behaviour expected, I didn't, I don't think this was just about being autistic, I never went to nursery or had baby sitters or anything and only played with one other child until I went to school. I hated it and continued to hate it, I never really got on with it, either personally or academically, I was acused of being selfsh when I didn't actually know how to share, it was something I'd never had to do before.

    How is your daughter with smaller numbers of other children? Get her assessed but dont' stress about it too much, or rather try not to, parenting always feels like one massive guilt trip. She may just need gently introducing to others, how is she if people come to the house? It's possible that someone quite innocently said to her that she has to be a good girl and help mummy with the new baby and she's taken this to heart way more than intended. I've known little boys who've been told they have to be the man of the house, now daddy's not there so much, they've internalised it way more than expected and way more than they know how to deal with.

Reply
  • I hated being in groups of people as a child, they were always so loud and seemed to know each other and the rules of behaviour expected, I didn't, I don't think this was just about being autistic, I never went to nursery or had baby sitters or anything and only played with one other child until I went to school. I hated it and continued to hate it, I never really got on with it, either personally or academically, I was acused of being selfsh when I didn't actually know how to share, it was something I'd never had to do before.

    How is your daughter with smaller numbers of other children? Get her assessed but dont' stress about it too much, or rather try not to, parenting always feels like one massive guilt trip. She may just need gently introducing to others, how is she if people come to the house? It's possible that someone quite innocently said to her that she has to be a good girl and help mummy with the new baby and she's taken this to heart way more than intended. I've known little boys who've been told they have to be the man of the house, now daddy's not there so much, they've internalised it way more than expected and way more than they know how to deal with.

Children
  • Thank you so much for your reply. 

    Yes we’ve really picked up on the not knowing how to share still, and she can get quite stressed out and obsessive with toys. At home we can manage it fine but it can be difficult out and about. 

    she’s very hit and miss depending on the child. She’s ok with one of my friends little girls to be near her and do something easy like the Trampoline. But if the child tries to directly interact with her she gets stressed and wants to leave/them to leave, 

    I think mainly at the moment I just don’t know whether to persist with another new nursery or give it a rest for a bit. Exactly that, I don’t want her to get older and feel she has no clue how to be around other kids, if it’s likely to help. Just no idea how to build her up without adding to the borderline traumatic response she has at the moment just being in a nursery.

    her language skills are a little behind at the moment so it’s difficult to know sometimes what she’s picking up and what she isn’t. 

    I just really want to help and understand her but she is still really young.

    thank you again