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When the EHCP ends - what then?!

Kate Kestrel

Does anyone have any thoughts they’d like to share on what to do when a young person’s EHCP runs out when they reach 25?
My son isn’t far off from this happening - and it’s quite a worry. He has a little support at the moment with online one to one tuition - but this won’t be funded once the EHCP ends - so that will finish. What happens in terms of support and help for young autistic adults when their EHCP ends? Is there basically nothing?! No help or support at all?

If anyone has any advice or experience with this I’d really appreciate hearing how people dealt with this. Because I’m not sure what we’re going to do. Thanks. 

Parents

  • It is a worry, we have been in the same situation. We carried on with speech and language therapy privately after our daughters  EHCP ended. Sadly there seems to be little support. It’s almost as if at the age of 25 everything is ok and no support needed.

     If your son is thinking about work options then Ambitious About Autism have intern and work opportunities in different areas of the country , so it might be worth looking at their website and signing up for their alerts.  It also depends what area you live in too, there may be some charities locally which help support young people, either through befriending or social clubs/ activities or work opportunities.  You could try social services to see if your young man is eligible for any support under the Care Act. If your son is thinking about higher education such as college then he should  be eligible for a government grant called the ‘disabled  support allowance’ DSA which helps fund support at uni or college. It is not a loan but a grant which does not need paying back. Hope this helps a little. I totally understand what you are going through and hope you find the support your son needs. 

  • in reply to NAS36756

    That’s extremely helpful - thank you so much  - I will look at the things you mention. 

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