Good morning. My son has complex needs - he has a very rare genetic condition (only 38 recorded cases in the UK) which manifests as a severe learning disability, a number of physical issues and autism. As he's got older and stronger he is increasingly difficult to manage. He is less compliant than he used to be, has stimming rituals (constantly undoing the tabs on his pads), and gets locked into things. When he goes to the childminder is refuses to leave the house if he thinks he is going to have lunch there. So we need to hide his lunch in the car and leave it outside the door after dropping him off. He very happily eats his lunch there. When we go to a dance class that he loves, he refuses to get out the car in the car park. Everything takes ages and it's very hard for us not to lose our rags, which helps neither him nor us.
We're in SE London, and really need help. I wonder if there are specialists in this sort of thing (although not sure what to call it) who could help us find better patterns/rituals that work better for us and him? It's really taking its toll on the whole family. We can travel and can pay, if we can find someone who knows their stuff and could help us.
Does anyone know of anyone?
Thank you in advance!