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Pain and disruption of routine

ParentingAutism

Happy New Year!! Sorry it's a bit late. 

To start off with, my daughter, Chloe, is doing amazingly well and I am so proud of her. She has been such a great help round the house, like always, but especially now since we are having a new kitchen being fitted. Years ago, we had an extension done and that was just absolutely horrific due to the meltdowns it created. Today, she is absolutely having so much fun pretending to be camping since we have no kitchen so can't cook, wash up, etc. There is such a huge difference in her and I love it! 

Over the past few months, so much has happened for her but she has taken it like a champ. The only thing she is currently struggling with is the pain she has been in for years. This pain has only gotten more frequent and worse. At last, the doctor has taken a blood test which can back clear so told us to keep a diary which we have done for the past month. We are going to go back soon. However, in the meantime, does anyone know of any stronger painkillers she can take since none have had an effect. We've tried paracetamol, ibuprofen, panadol, and anadin. Does anyone know what could also be the cause of this pain? 

If there are any tips we can try to just reduce the pain, even slightly, she would really appreciate it. Thanks 

  • in reply to ParentingAutism

    Does she have hypermobility in her joints?

    What about asking the doctor for a referal to a pain clinic?

  • in reply to TheCatWoman

    She experiences pain in her feet, knee, leg, wrists mostly. She describes the pain as just pain. She said it's not aches and knows the difference between the two. 

  • Its a bit hard to say anything meaningul without knowing where the pain is located, if it's not to personal could you tell us what sort of pain it is and where?

  • Distraction techniques can be helpful for some people. Massage, meditation, music,  - there are apps that dedicate some meditation sessions to issues such as addiction, eating problems, pain, bereavement and so on. Two that come to mind are Headspace and Calm. The NHS has apps but I haven’t checked out their content. 

  • Chamomile Tea, or even Ginger Tea, can relieve pain; especially Period Pain.

  • Hi, Iain has given some good advice but it's difficult as you don't say where the pain is or when it is better or worse. I often get pain in my neck and shoulders which is postural, so you could speak to your doctor about a possible referral to a physiotherapist to see if they can prescribe exercises to help your daughter. And ask a pharmacist about painkillers to see if they can advise anything better for her short term.

  • This will be a tricky one as we are forbidden from offering medical advice on this forum and the mods are getting rather draconian with the enforcement.

    What I would say is to use the professionals more - get the doctor to give a referral to a child pain specialist and possibly a child psychiatrist as they would have a better chance at understanding the autism link to the pain plus are able to prescribe medication.

    You can also helo with doing some research on your own with her - keep a detailed diary of what she eats, wears, products she uses, when she eats / drinks and when the pain starts - all this will help form a picture of what could be the precursor and potentially the cause, assuming it is a straight forward cause and effect situation.

    There could also be a hypersensitivity element or allergic response - all things the GP should be arranging specialist assessments for so I would consider keeping a tight grip on follow ups and possible routes for investigation if they seem out of their depth.

    There could also be a psychological component here which is where the psychiatrist can be of help as well.

    Lots of possibilities but no specific advice other than chase the professionals whose job it is to help.

    Sorry I can't be or more specific help here.