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health care appointments

snow

Hi all I am a Children's Health care professional and a student specialising in working with children with severe disability, learning disability and severe autism, I am writing an essay about the experiences of autsitic children when going to routine health appointments such as vaccinations, blood tests (if health problems are suspected) dental checks and hearing and sight assessments.

I am here to ask if you could possibly breifly share experiences you have had both good and bad and any suggestions you can make to aid someone such as myself to make your appointment as easy and relaxed as possible, or if in these circumstances you would prefer that community nurses were to do all of this sort of thing in home/school.

 

thank you for your time.

Parents

  • When I took my autistic children (then undiagnosed) for their baby injections it was awful.

    My eldest child screamed as the nurse came towards her because she remembered the last one.  I had to get a member of staff to hold her as I knew she would think it was me causing her the awful pain.  The nurse said she had never seen a baby respond that way to an injection (the way she screamed, like a grown up) which was even before the injection.

    When my youngest had the same baby injections, the nurse scraped the needle along her skin before it went into the injection point and she really cried out, and a bruise came up around the injection site later on.

    When my youngest was 8 and I took her to a sight test she was very angry and aggressive in speaking to me, and the optician said "my, she's a little lady isn't she!"  At many other appointments for her sister's eye tests she melted down in the opticians through being stressed or overheated.  They probably dread us coming.

    We have suffered much misunderstanding from our GP due to lack of autism awareness too, meaning attribution of autistic traits to other causes.

    The thing that is desperately needed is autism awareness before anything else.

Reply

  • When I took my autistic children (then undiagnosed) for their baby injections it was awful.

    My eldest child screamed as the nurse came towards her because she remembered the last one.  I had to get a member of staff to hold her as I knew she would think it was me causing her the awful pain.  The nurse said she had never seen a baby respond that way to an injection (the way she screamed, like a grown up) which was even before the injection.

    When my youngest had the same baby injections, the nurse scraped the needle along her skin before it went into the injection point and she really cried out, and a bruise came up around the injection site later on.

    When my youngest was 8 and I took her to a sight test she was very angry and aggressive in speaking to me, and the optician said "my, she's a little lady isn't she!"  At many other appointments for her sister's eye tests she melted down in the opticians through being stressed or overheated.  They probably dread us coming.

    We have suffered much misunderstanding from our GP due to lack of autism awareness too, meaning attribution of autistic traits to other causes.

    The thing that is desperately needed is autism awareness before anything else.

Children
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