Is extreme tiredness normal?

I took my 13 yr old daughter out yesterday to meet friends that we haven't seen in ages.  It was a long day for her (train journey there and back) but we spent 5 hours with our friends, several having lunch, another 45 minutes stop for tea/cake as we were all aware that she couldn't cope with walking about for hours on end.

She really struggled to get through the last 2 hours.  I've never been one for staying in all the time so she is used to doing this sort of thing but she used to have so much more energy and get up and go.  It made me think over the last year and I can see that the extreme tiredness has been creaping up on us. 

It could be normal teenage hormones or her medication (she's been on Sertraline for 2 months) or is it because her sensory processing disoder is more extreme now?  Just wondered if others suffer or their children suffer and was there a time when things were better and if they are likely to get better?  I'm worried that she will become a recluse and lost contact with the outside world completely.  I'm still pretty new to this (diagnosis in Feb) and although I've been aware of her differences for a long time, am only just begining to 'get it'.

Parents
  • Hi Darkside,

    I had to reduce the sertraline back to the first dose of 25mg.  I think she must be very sensitive to it - we'd had a month of the extreme tiredness and it didn't look like it was going to pass.  The consultant suggested dropping back to 25mg because we'd noticed a difference when she first started taking it with things like her concentration.  She was suddenly able to sit and read for an hour rather than read a sentence, get up, fidget then go back and read the same sentence!  The one thing I have noticed though, she has put on a fair amount of weight since being on it.  I'm not sure if that's because of less fidgetting or lack of exercise but being a short girl, its going to hit her fragile self esteem if I'm not careful.

    My friends daughter also takes it.  She's not on the spectrum but suffers from severe anxiety at school during the exam period.  She's doing well on it.  I think everyone has different reactions and I have my fingers crossed that your boy's is a good one.

    You are very lucky to have a school with a unit.  My daughter is currently out of school.  We moved last year and the she couldn't cope with the new, very large school (1800 kids!) so is currently dual registered for some online schooling and has a tutor come to the house once a week, soon to be upped to twice.  I'm hoping to get her statemented so that she can have a choice of schools but the best school for her in this county is 24 miles away.

    I haven't read any of Tony Attwood's books - I'm currently doing an OU degree so have to do a lot of reading for that but once the exam is over in June, I'll have four amazing months to read the pile of books accumulating on my kindle!  Do you have a favourite?

Reply
  • Hi Darkside,

    I had to reduce the sertraline back to the first dose of 25mg.  I think she must be very sensitive to it - we'd had a month of the extreme tiredness and it didn't look like it was going to pass.  The consultant suggested dropping back to 25mg because we'd noticed a difference when she first started taking it with things like her concentration.  She was suddenly able to sit and read for an hour rather than read a sentence, get up, fidget then go back and read the same sentence!  The one thing I have noticed though, she has put on a fair amount of weight since being on it.  I'm not sure if that's because of less fidgetting or lack of exercise but being a short girl, its going to hit her fragile self esteem if I'm not careful.

    My friends daughter also takes it.  She's not on the spectrum but suffers from severe anxiety at school during the exam period.  She's doing well on it.  I think everyone has different reactions and I have my fingers crossed that your boy's is a good one.

    You are very lucky to have a school with a unit.  My daughter is currently out of school.  We moved last year and the she couldn't cope with the new, very large school (1800 kids!) so is currently dual registered for some online schooling and has a tutor come to the house once a week, soon to be upped to twice.  I'm hoping to get her statemented so that she can have a choice of schools but the best school for her in this county is 24 miles away.

    I haven't read any of Tony Attwood's books - I'm currently doing an OU degree so have to do a lot of reading for that but once the exam is over in June, I'll have four amazing months to read the pile of books accumulating on my kindle!  Do you have a favourite?

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