Is extreme tiredness normal?

misskittykat said:

I took my 13 yr old daughter out yesterday to meet friends that we haven't seen in ages.  It was a long day for her (train journey there and back) but we spent 5 hours with our friends, several having lunch, another 45 minutes stop for tea/cake as we were all aware that she couldn't cope with walking about for hours on end.

She really struggled to get through the last 2 hours.  I've never been one for staying in all the time so she is used to doing this sort of thing but she used to have so much more energy and get up and go.  It made me think over the last year and I can see that the extreme tiredness has been creaping up on us. 

It could be normal teenage hormones or her medication (she's been on Sertraline for 2 months) or is it because her sensory processing disoder is more extreme now?  Just wondered if others suffer or their children suffer and was there a time when things were better and if they are likely to get better?  I'm worried that she will become a recluse and lost contact with the outside world completely.  I'm still pretty new to this (diagnosis in Feb) and although I've been aware of her differences for a long time, am only just begining to 'get it'.

My lad is exhusted at the end of every day. He comes home from college and normally has to sleep several hours before he can continue with his study, then we have to go through the process of waking him which takes some time. He's always been this way. Maintaining concentration and dealing with the sensory overload at college takes every ounce of his energy from him and gives him frequent migraines, which exhuast him still further. For this reason he has become a recluse. This past Summer he ventured out to see a friend locally, a couple of times, but this isn't his usual pattern. He has DCD & hypermobile joints and falls constantly, so when he came back he black and blue and was in considerable pain. It laid him up for a couple of days afterwards.

Pushing him out the door is essential to him maintaining contact with the outside world, but it comes at a painful price to him. I think you just have to accept that for some these things require tremendous effort. Even effort for the body to stay upright in my sons case, but also mental effort. Perhaps a balance is key, however, the only balance we know is that he needs regular rest. Bare in mind that many on the Spectrum do get there, it just takes a lot longer.

Take Care,

Coogy xx

misskittykat said:

I took my 13 yr old daughter out yesterday to meet friends that we haven't seen in ages.  It was a long day for her (train journey there and back) but we spent 5 hours with our friends, several having lunch, another 45 minutes stop for tea/cake as we were all aware that she couldn't cope with walking about for hours on end.

She really struggled to get through the last 2 hours.  I've never been one for staying in all the time so she is used to doing this sort of thing but she used to have so much more energy and get up and go.  It made me think over the last year and I can see that the extreme tiredness has been creaping up on us. 

It could be normal teenage hormones or her medication (she's been on Sertraline for 2 months) or is it because her sensory processing disoder is more extreme now?  Just wondered if others suffer or their children suffer and was there a time when things were better and if they are likely to get better?  I'm worried that she will become a recluse and lost contact with the outside world completely.  I'm still pretty new to this (diagnosis in Feb) and although I've been aware of her differences for a long time, am only just begining to 'get it'.

My lad is exhusted at the end of every day. He comes home from college and normally has to sleep several hours before he can continue with his study, then we have to go through the process of waking him which takes some time. He's always been this way. Maintaining concentration and dealing with the sensory overload at college takes every ounce of his energy from him and gives him frequent migraines, which exhuast him still further. For this reason he has become a recluse. This past Summer he ventured out to see a friend locally, a couple of times, but this isn't his usual pattern. He has DCD & hypermobile joints and falls constantly, so when he came back he black and blue and was in considerable pain. It laid him up for a couple of days afterwards.

Pushing him out the door is essential to him maintaining contact with the outside world, but it comes at a painful price to him. I think you just have to accept that for some these things require tremendous effort. Even effort for the body to stay upright in my sons case, but also mental effort. Perhaps a balance is key, however, the only balance we know is that he needs regular rest. Bare in mind that many on the Spectrum do get there, it just takes a lot longer.

Take Care,

Coogy xx