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Is extreme tiredness normal?

misskittykat

I took my 13 yr old daughter out yesterday to meet friends that we haven't seen in ages.  It was a long day for her (train journey there and back) but we spent 5 hours with our friends, several having lunch, another 45 minutes stop for tea/cake as we were all aware that she couldn't cope with walking about for hours on end.

She really struggled to get through the last 2 hours.  I've never been one for staying in all the time so she is used to doing this sort of thing but she used to have so much more energy and get up and go.  It made me think over the last year and I can see that the extreme tiredness has been creaping up on us. 

It could be normal teenage hormones or her medication (she's been on Sertraline for 2 months) or is it because her sensory processing disoder is more extreme now?  Just wondered if others suffer or their children suffer and was there a time when things were better and if they are likely to get better?  I'm worried that she will become a recluse and lost contact with the outside world completely.  I'm still pretty new to this (diagnosis in Feb) and although I've been aware of her differences for a long time, am only just begining to 'get it'.

Parents

  • Has there been any attempt to understand the panic attacks?

    As Longman says, bullying is very common. I too was bullied at school and was a school refuser (before being home schooled), and selectively mute.

    I have no experince about the learning disabilities side, but the use of a medicine for panic attacks without understanding why they are happening is not good practice. One thing is that children and young people with autism often find it very difficult to decscribe what it is that is causing them distress, also they can take a long time to get over things, and it is very importent that they are not rushed into things just because it is inconvenient for school/family/professionals. The difference between coming to terms with a problem in their own time and being rushed is absolutely huge. Rush someone with autism and they will have a problem for ever, let them come to terms with it and they will gain confidence.

    Lastly, professionals are not all the same, just because someone has a medical degree and calls themselves an expert in autism does not mean they are. Also a lot of psychiatrists are under pressure from spending cuts, time constraints etc. and popping pills is a way to see a problem the  patient present with reduce, without any investigation of the underlying causes. There is a truth in psychiatry and psychology that a lot of problems simply go away in time, and using drugs gives the patient/patient's family some sense that they have helped. Unfortunately for other problems the drugs just cover up what is really going on and the dose just gets bigger, or the prescription goes on for ever. I am not saying that this is the case for your daughter, but just to be aware of it.

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  • Has there been any attempt to understand the panic attacks?

    As Longman says, bullying is very common. I too was bullied at school and was a school refuser (before being home schooled), and selectively mute.

    I have no experince about the learning disabilities side, but the use of a medicine for panic attacks without understanding why they are happening is not good practice. One thing is that children and young people with autism often find it very difficult to decscribe what it is that is causing them distress, also they can take a long time to get over things, and it is very importent that they are not rushed into things just because it is inconvenient for school/family/professionals. The difference between coming to terms with a problem in their own time and being rushed is absolutely huge. Rush someone with autism and they will have a problem for ever, let them come to terms with it and they will gain confidence.

    Lastly, professionals are not all the same, just because someone has a medical degree and calls themselves an expert in autism does not mean they are. Also a lot of psychiatrists are under pressure from spending cuts, time constraints etc. and popping pills is a way to see a problem the  patient present with reduce, without any investigation of the underlying causes. There is a truth in psychiatry and psychology that a lot of problems simply go away in time, and using drugs gives the patient/patient's family some sense that they have helped. Unfortunately for other problems the drugs just cover up what is really going on and the dose just gets bigger, or the prescription goes on for ever. I am not saying that this is the case for your daughter, but just to be aware of it.

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