help please undiagnosed son and mainstream

hi i really need some advice please .

my son is 4 and going through autism assessments . So far the reports are saying inapropriate social interaction (overly friendly huggs everyone etc) , inconsistant eye contact , self stimulating (flapping , running in circles and whistles ) echolalia , sensory seeks (loves touch ) some sensory avoident (food , water ) , likes things to be the same . He didn't acknologe the OT at school even though he had met her three times out of school . he is very immature for his age (his mannerisums the tone of speech ) , he is very litural and it's unclear if he is understanding as much as we think .

he started reception in september on school action plus and has set targets , mostly social and tidying up . i was told that complex communication team would be involved (this hasn't happened ). Educational pshycologist has asked for the school to use story boards (they are only using a picture timetable which they change and don't take the picture down so that confuses him ) we had an awful time trying to get him to understand about a school trip before christmas . She also advised that he sits near a teacher or ta so he is kept focused this doesn't seem to be happening as i witnessed him running out the classroom and running around the classroom when everyone was sat down on the day i was early to collect him . she also advised he stay in a nurture group , they have now took him out saying he doesn't need it .

My son has had three incidents of banging his head this fortnight , one running into a child (fair enough) two throwing himself on the floor and catching his head on the chair , three porpesly running at the glass doors . i have asked the teacher if she thinks there needs to be a risk assessment but told no , there is not much they can do about the door .

Everytime i try to explain about his autistic traits and how they might be able to help him they dissmiss it and say it could be argued that all children have traits and they don't think he will be diagnosed . they insist everything is fine even though my husband had to peel him of his leg this morning because he wasn't allowed to take a minion keyring into class and the teacher took it off him she didn't give it back till the end of the day . he explodes as soon as he gets home and often rocks in his special needs pram on the way home (used because of his hypermobility and the fact he won't let me hold his hand and runs into the road ).

A statement was mentioned a few months ago but now been told their not going t do it cause his behaviour isn't too bad .

im made to feel like im over reacting and even been told i worry to much . my son is not happy and i feel that their not recognising his needs or keeping him safe but because they won't admit to it i don't know what do next .

sorry for the essay

Parents
  • Grrrrrrrr!!! makes my blood boil.  So sorry to hear that you are getting nowhere with a care agency who purport to support the interests of children, surely this should come under safegarding, as it is detrimental to the childs health and well being.  It is abuse it is about using the child to gain acolades in an adult world of politics, and money.  But because they are a local authority, and are backed by Government legislation, they can unshackle the chains and walk away and blame the parents.

    www.teescpp.org.uk/principles-of-safeguarding

    The problem with most professionals is that they have an unjustifiably high regard for themselves (I am a professional, so I've seen it first hand).  They are unable to reflect on the fact that safegarding works both ways, ie, that it is a parental responsibility to protect their children against being exploited, bullied and otherwise coerced by a person or body of people that think they are acting in a childs best interest, but in reality are acting on their own behalf (this also works with older adults, of which I have much more experience with) I despise these people, they don't bend over backwards to do what is right for an individual, then bend over backwards to protect their own behinds!!

    I was looking on the NAS last night and came accross a number of specialist Autistic schools around the country.  I don't know where you live, or whether you have seen this information.  My son is probably a bit to far into the education system now to benifit, but I would certainly consider it for my daughter. I have a group of aspie Mum's on Facebook, some I have met through my son's friendship at junior school, and some are just friends of them.  One lady has just begun home schooling for her son.  My hat off to her, that is a mamoth undertaking at year 9, but he is repaying her by being happy and hoovering in the lunch break! so there is some reward in it.  Another friend has finally had her son statemented, after 5-6 years of battling.  It should not be like this, there is too much politics in health, education and social care.

    I'm consious that we have taken over the orriginal conversation/post, which is probably a pretty Aspie thing to do :)  Sorry mum2two

Reply
  • Grrrrrrrr!!! makes my blood boil.  So sorry to hear that you are getting nowhere with a care agency who purport to support the interests of children, surely this should come under safegarding, as it is detrimental to the childs health and well being.  It is abuse it is about using the child to gain acolades in an adult world of politics, and money.  But because they are a local authority, and are backed by Government legislation, they can unshackle the chains and walk away and blame the parents.

    www.teescpp.org.uk/principles-of-safeguarding

    The problem with most professionals is that they have an unjustifiably high regard for themselves (I am a professional, so I've seen it first hand).  They are unable to reflect on the fact that safegarding works both ways, ie, that it is a parental responsibility to protect their children against being exploited, bullied and otherwise coerced by a person or body of people that think they are acting in a childs best interest, but in reality are acting on their own behalf (this also works with older adults, of which I have much more experience with) I despise these people, they don't bend over backwards to do what is right for an individual, then bend over backwards to protect their own behinds!!

    I was looking on the NAS last night and came accross a number of specialist Autistic schools around the country.  I don't know where you live, or whether you have seen this information.  My son is probably a bit to far into the education system now to benifit, but I would certainly consider it for my daughter. I have a group of aspie Mum's on Facebook, some I have met through my son's friendship at junior school, and some are just friends of them.  One lady has just begun home schooling for her son.  My hat off to her, that is a mamoth undertaking at year 9, but he is repaying her by being happy and hoovering in the lunch break! so there is some reward in it.  Another friend has finally had her son statemented, after 5-6 years of battling.  It should not be like this, there is too much politics in health, education and social care.

    I'm consious that we have taken over the orriginal conversation/post, which is probably a pretty Aspie thing to do :)  Sorry mum2two

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