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help please undiagnosed son and mainstream

mummy2two

hi i really need some advice please .

my son is 4 and going through autism assessments . So far the reports are saying inapropriate social interaction (overly friendly huggs everyone etc) , inconsistant eye contact , self stimulating (flapping , running in circles and whistles ) echolalia , sensory seeks (loves touch ) some sensory avoident (food , water ) , likes things to be the same . He didn't acknologe the OT at school even though he had met her three times out of school . he is very immature for his age (his mannerisums the tone of speech ) , he is very litural and it's unclear if he is understanding as much as we think .

he started reception in september on school action plus and has set targets , mostly social and tidying up . i was told that complex communication team would be involved (this hasn't happened ). Educational pshycologist has asked for the school to use story boards (they are only using a picture timetable which they change and don't take the picture down so that confuses him ) we had an awful time trying to get him to understand about a school trip before christmas . She also advised that he sits near a teacher or ta so he is kept focused this doesn't seem to be happening as i witnessed him running out the classroom and running around the classroom when everyone was sat down on the day i was early to collect him . she also advised he stay in a nurture group , they have now took him out saying he doesn't need it .

My son has had three incidents of banging his head this fortnight , one running into a child (fair enough) two throwing himself on the floor and catching his head on the chair , three porpesly running at the glass doors . i have asked the teacher if she thinks there needs to be a risk assessment but told no , there is not much they can do about the door .

Everytime i try to explain about his autistic traits and how they might be able to help him they dissmiss it and say it could be argued that all children have traits and they don't think he will be diagnosed . they insist everything is fine even though my husband had to peel him of his leg this morning because he wasn't allowed to take a minion keyring into class and the teacher took it off him she didn't give it back till the end of the day . he explodes as soon as he gets home and often rocks in his special needs pram on the way home (used because of his hypermobility and the fact he won't let me hold his hand and runs into the road ).

A statement was mentioned a few months ago but now been told their not going t do it cause his behaviour isn't too bad .

im made to feel like im over reacting and even been told i worry to much . my son is not happy and i feel that their not recognising his needs or keeping him safe but because they won't admit to it i don't know what do next .

sorry for the essay

Parents

  • Thank you. I will let my Gp contact the Lorna Wing Centre, i'm sure they will be able to direct her in the right direction.

    My Son has has a meltdown tonight about homework.  He rarely has meltdown's at home, but after being off work myself, for six months due to stress, I can see the signs in him. He admitted that school were expecting too much from him, and is finding it difficult to cope with the expectations, and is really angry about homework.  Because he is bright, they have put him in the extension band, which means (I think) he will do some of his GCSE's early....Why??? His birthday is in August, (He was born a month premature) so he is already almost a year behind, and they want him to take major exams a year early, that is almost two years early for somebody with a delayed developmental condition.  Intellectually he may be able ro achive his grades, but I doubt he is ready developmentally for this challenge.  This is all very new to me, and the schooling system is something one has to traverse to get to the real nitty gritty of life.  That said, I know how important those bits of paper can be, whatever age in life you chose to wield them. I don't understand why it is so important for the school to push children to achieve early, I cannot see any benifit for the child.  My daughter also has been sent home with a thick book of mathmatics to complete at home and the same with English. This is just to boost the figures for the school, in sending pupils to secondary school with good Sats results - were does the child figure in this???

Reply

  • Thank you. I will let my Gp contact the Lorna Wing Centre, i'm sure they will be able to direct her in the right direction.

    My Son has has a meltdown tonight about homework.  He rarely has meltdown's at home, but after being off work myself, for six months due to stress, I can see the signs in him. He admitted that school were expecting too much from him, and is finding it difficult to cope with the expectations, and is really angry about homework.  Because he is bright, they have put him in the extension band, which means (I think) he will do some of his GCSE's early....Why??? His birthday is in August, (He was born a month premature) so he is already almost a year behind, and they want him to take major exams a year early, that is almost two years early for somebody with a delayed developmental condition.  Intellectually he may be able ro achive his grades, but I doubt he is ready developmentally for this challenge.  This is all very new to me, and the schooling system is something one has to traverse to get to the real nitty gritty of life.  That said, I know how important those bits of paper can be, whatever age in life you chose to wield them. I don't understand why it is so important for the school to push children to achieve early, I cannot see any benifit for the child.  My daughter also has been sent home with a thick book of mathmatics to complete at home and the same with English. This is just to boost the figures for the school, in sending pupils to secondary school with good Sats results - were does the child figure in this???

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