help please undiagnosed son and mainstream

hi i really need some advice please .

my son is 4 and going through autism assessments . So far the reports are saying inapropriate social interaction (overly friendly huggs everyone etc) , inconsistant eye contact , self stimulating (flapping , running in circles and whistles ) echolalia , sensory seeks (loves touch ) some sensory avoident (food , water ) , likes things to be the same . He didn't acknologe the OT at school even though he had met her three times out of school . he is very immature for his age (his mannerisums the tone of speech ) , he is very litural and it's unclear if he is understanding as much as we think .

he started reception in september on school action plus and has set targets , mostly social and tidying up . i was told that complex communication team would be involved (this hasn't happened ). Educational pshycologist has asked for the school to use story boards (they are only using a picture timetable which they change and don't take the picture down so that confuses him ) we had an awful time trying to get him to understand about a school trip before christmas . She also advised that he sits near a teacher or ta so he is kept focused this doesn't seem to be happening as i witnessed him running out the classroom and running around the classroom when everyone was sat down on the day i was early to collect him . she also advised he stay in a nurture group , they have now took him out saying he doesn't need it .

My son has had three incidents of banging his head this fortnight , one running into a child (fair enough) two throwing himself on the floor and catching his head on the chair , three porpesly running at the glass doors . i have asked the teacher if she thinks there needs to be a risk assessment but told no , there is not much they can do about the door .

Everytime i try to explain about his autistic traits and how they might be able to help him they dissmiss it and say it could be argued that all children have traits and they don't think he will be diagnosed . they insist everything is fine even though my husband had to peel him of his leg this morning because he wasn't allowed to take a minion keyring into class and the teacher took it off him she didn't give it back till the end of the day . he explodes as soon as he gets home and often rocks in his special needs pram on the way home (used because of his hypermobility and the fact he won't let me hold his hand and runs into the road ).

A statement was mentioned a few months ago but now been told their not going t do it cause his behaviour isn't too bad .

im made to feel like im over reacting and even been told i worry to much . my son is not happy and i feel that their not recognising his needs or keeping him safe but because they won't admit to it i don't know what do next .

sorry for the essay

Parents
  • Thank you for your quick response and detailed info. I did think about the Lorna Wing as that is where Dr Gould is based, but wasn't sure wether my case was complex??  I will pass this info onto my GP. I think they have to deal with so many complex 'physical needs' that these 'brain issues, behavioural issues' are classed as a secondary concern, ie they are not life threatening... only they are, in terms of quality of life and the risk of harm, suicide etc. It is such a relief that people have campainged, and researched and worked hard to bring this into the public domain, and I am so grateful for that. I can now hold my head up high and acknowledge "I am odd, and I like being this way, but I'm not as odd as you, because I actually give a s*** about other people and you only give a s*** about yourself, how odd is that???"

Reply
  • Thank you for your quick response and detailed info. I did think about the Lorna Wing as that is where Dr Gould is based, but wasn't sure wether my case was complex??  I will pass this info onto my GP. I think they have to deal with so many complex 'physical needs' that these 'brain issues, behavioural issues' are classed as a secondary concern, ie they are not life threatening... only they are, in terms of quality of life and the risk of harm, suicide etc. It is such a relief that people have campainged, and researched and worked hard to bring this into the public domain, and I am so grateful for that. I can now hold my head up high and acknowledge "I am odd, and I like being this way, but I'm not as odd as you, because I actually give a s*** about other people and you only give a s*** about yourself, how odd is that???"

Children
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