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Diagnosis battle

nathsmum

Hello everyone,  I am new here. I guess, like others I have found my way here as a parent at the end of my tether. 

I have known for years that my son is on the spectrum, but I was brushed off by a health visitor when he was 2 and as I haven't been able to cope with his difficulties well, I didn't worry too much about it until now. He is now 7 and it would seem he leans towards aspergers.  

I have the full support of my son's school and the autism team, who are informally involved at the moment. Despite my GP having a letter from my son's head teacher and SenCo, he is still being awkward about referring him for an assessment. 

I guess what I am asking for is advice on how to deal with him, or even some explanation as to why he is being so awkward about it.  Is it a funding thing?

Please help

Parents

  • Hi,

    Just read your post and I really feel for you.  I am a mum of a 17 year old who has only been diagnosed with autism for the past 6 months.  I always knew he was different but school and GP's would not listen.  His last 3 years of secondary school were sheer hell!!!  After speaking to a different GP at our practice 12 months ago, she reluctantly referred him to camhs.  I waited ages for an appointment and ended up ringing to see where he was on the list.  I got to speak to someone in the Autism team who told me that looking at the GP referral they didn't think that my son had any need for an assessment.  I explained to her the concerns I had and we discussed some of his behaviour as a child and she then decided that he did in fact need assessing!!  She rushed an appointment through for him.  One of the team came out to my home to see us and was with us for about one and a half hours.  It only took that amount of time with my son for them to push a full assessment through.  We got the diagnosis last July.  He has Autism.  He has significant impairment in all three of the triad of impairments,  Sensory issues and problems with theory of mind.

    My point is, keep pushing.  We know our children better than anyone.  I feel guilty for not pushing this harder sooner.  If I had, my son may have got through secondary school without all of the problems of being labelled a problem child.

    Don't take no for an answer and I hope all goes well for you and your son

    Jane

Reply

  • Hi,

    Just read your post and I really feel for you.  I am a mum of a 17 year old who has only been diagnosed with autism for the past 6 months.  I always knew he was different but school and GP's would not listen.  His last 3 years of secondary school were sheer hell!!!  After speaking to a different GP at our practice 12 months ago, she reluctantly referred him to camhs.  I waited ages for an appointment and ended up ringing to see where he was on the list.  I got to speak to someone in the Autism team who told me that looking at the GP referral they didn't think that my son had any need for an assessment.  I explained to her the concerns I had and we discussed some of his behaviour as a child and she then decided that he did in fact need assessing!!  She rushed an appointment through for him.  One of the team came out to my home to see us and was with us for about one and a half hours.  It only took that amount of time with my son for them to push a full assessment through.  We got the diagnosis last July.  He has Autism.  He has significant impairment in all three of the triad of impairments,  Sensory issues and problems with theory of mind.

    My point is, keep pushing.  We know our children better than anyone.  I feel guilty for not pushing this harder sooner.  If I had, my son may have got through secondary school without all of the problems of being labelled a problem child.

    Don't take no for an answer and I hope all goes well for you and your son

    Jane

Children
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