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Diagnosis battle

nathsmum

Hello everyone,  I am new here. I guess, like others I have found my way here as a parent at the end of my tether. 

I have known for years that my son is on the spectrum, but I was brushed off by a health visitor when he was 2 and as I haven't been able to cope with his difficulties well, I didn't worry too much about it until now. He is now 7 and it would seem he leans towards aspergers.  

I have the full support of my son's school and the autism team, who are informally involved at the moment. Despite my GP having a letter from my son's head teacher and SenCo, he is still being awkward about referring him for an assessment. 

I guess what I am asking for is advice on how to deal with him, or even some explanation as to why he is being so awkward about it.  Is it a funding thing?

Please help

Parents

  • I wish someone (maybe NAS????) would convey to GPs what it is like to be the "different" kid at school.

    I understand the 'labelling' argument perfectly - and on its own it makes good sense not to lumber a child with a label, especially given that autism still stigmatises.

    But having gone through school (and most of my adult life) without that diagnoses, I can witness to something the GPs cannot see.

    Being the odd, awkward child who doesn't fit in with his/her peers, cannot adapt properly to the "rules" but has no explanation other than the inevitable "mental" labels.

    I think if parents could just point out to GPs who come out with such platitudes, the evidence out there of so much needless suffering that could be alleviated a little by having the diagnosis.

    But then, for some strange reason, GPs all seem to be insensitive dullards, who think their professional knowallism takes priority. So agreed it would still be hard to elicit any help from them. Despite their so called oath, I don't think many GPs really care a toss about their patients.

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  • I wish someone (maybe NAS????) would convey to GPs what it is like to be the "different" kid at school.

    I understand the 'labelling' argument perfectly - and on its own it makes good sense not to lumber a child with a label, especially given that autism still stigmatises.

    But having gone through school (and most of my adult life) without that diagnoses, I can witness to something the GPs cannot see.

    Being the odd, awkward child who doesn't fit in with his/her peers, cannot adapt properly to the "rules" but has no explanation other than the inevitable "mental" labels.

    I think if parents could just point out to GPs who come out with such platitudes, the evidence out there of so much needless suffering that could be alleviated a little by having the diagnosis.

    But then, for some strange reason, GPs all seem to be insensitive dullards, who think their professional knowallism takes priority. So agreed it would still be hard to elicit any help from them. Despite their so called oath, I don't think many GPs really care a toss about their patients.

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