Should Aspergers child be put in a behavioural pupil referral unit?

I am just about at the end of my tether with my daughter's schooling.

She was diagnosed with ADHD/Dyspraxia aged 7 and Asperger's aged 12, she is also epileptic. She is now aged 14 and in year 10.

She attended mainstream school until year 8, when the school insisted they had 'tried everything they could' and said that they felt they were just 'babysitting' her. She was moved to a small unit which had no structure or fixed rules and this was a disaster. Following several attempts to get into a suitable PRU, she was finally given a part time place in June 2013.

She has received 2 exclusions already due to her meltdowns, where her language can be quite colourful, although she is not violent; she will refuse flatly to work and staff are concerned about the effect this is having on other vulnerable students.

She is very difficult to motivate in and out of school and rewards/consequences etc... have no effect.

Anyway, the executive head of the PRU has now decided that she does not want my daughter there any longer (although she has passed this desire on to me via another staff member); and there is suggestions of her being moved to a PRU for behavioural difficulties. I intend to challenge this as i believe her outbursts are her way of coping with sensory overload (high pitched voices seem to be a trigger), not out of intention.

I have been struggling with schools for over 10 years now and have rarely gone a week without her being sent home.

I would be interested to hear if anyone else has had similar problems, to me it seems so unfair that a child with a diagnosed conditiion should be dismissed as a 'naughty kid'.

Parents
  • Hi - this must be awful for both of you.  Social care is so short of funding now that if you needs are not "high" or "severe", then sufficient funding from them is difficult to get.  If he doesn't fit the categories for being part funded by health then you end up in the situation you're presently in.  This leads to the problems you both now have.  You somehow need to get his assessments into the "high" brackets, not on every indicator, but on several of them.  You need to highlight how life would be for him if you were not intervening to help.  This is v important.  By doing what any loving parent would do you may inadvertently be facilitating him getting a "moderate" instead of a "high" score.  I did something similar to you for a few years.  It will take a toll on your emotional and physical health and cannot be maintained indefinitely, esp when your other son is taken into account.  Get a carer's assessment, as has been suggested.  Explain how his life would be if you couldn't give all this support any longer. That is v relevant.  What if you were ill, how would things deteriorate?  Get your GP involved in relation to yourself and your son.   

Reply
  • Hi - this must be awful for both of you.  Social care is so short of funding now that if you needs are not "high" or "severe", then sufficient funding from them is difficult to get.  If he doesn't fit the categories for being part funded by health then you end up in the situation you're presently in.  This leads to the problems you both now have.  You somehow need to get his assessments into the "high" brackets, not on every indicator, but on several of them.  You need to highlight how life would be for him if you were not intervening to help.  This is v important.  By doing what any loving parent would do you may inadvertently be facilitating him getting a "moderate" instead of a "high" score.  I did something similar to you for a few years.  It will take a toll on your emotional and physical health and cannot be maintained indefinitely, esp when your other son is taken into account.  Get a carer's assessment, as has been suggested.  Explain how his life would be if you couldn't give all this support any longer. That is v relevant.  What if you were ill, how would things deteriorate?  Get your GP involved in relation to yourself and your son.   

Children
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