Made to feel like I have lied!:(

My daughter was diagnosed with autism this summer aged 11. She started high school, became suicidal and so only attended 8 times. I have managed to get funding for home schooling on medical grounds and she is under assessment for a statement to hopefully get her a place at a special school. As part of this assessment my daughter had a home visit from an educational psychologist. She said my daughter was very immature and vulnerable. She said she needed to be taught what is socially acceptable behaviour for her age etc. Then she spoke to the secondary school and the primary school. The secondary school said she was 'comfortable and happy there'. The primary school said she showed no signs of autism there! She has a formal diagnosis and definatly did show signs of autism in both schools. She is passive and well behaved at school but has never made friends. The schools have blatently lied and said she did not require extra support, even though they supported her but did not document it! Her primary school missed all the signs and did not support me in trying to get a diagnosis,they let her down. I feel like they are still doing that. I'm so frustrated and upset. The educational psychologist phoned me the day after her visit and told me what the schools have said. She said it is her recommendations that matter most in her report and my daughter is obviously autistic and unaware of social cues and expectations and behaves like a 7 year old! After finally getting a diagnosis I thought I could put the schools negativity behind us but I feel now, they are still able to negativly impact on my child. Why are they doing it! I feel like a mad woman!

Parents
  • Knowledge about autism is just not getting through to where it needs to.  Even clinicians are struggling to recognise all the presentations of autism, they seem flummoxed by it being a spectrum and fear diagnosing even though not all features (according to diagnostic criteria) need to be present to diagnose.  They have no idea about the NICE Guidelines, no idea about the Autism Act/Autism Strategy and no idea about the latest research and knowledge on autism.

    When is it going to get through?  Who is going to take responsibility to educate them?

Reply
  • Knowledge about autism is just not getting through to where it needs to.  Even clinicians are struggling to recognise all the presentations of autism, they seem flummoxed by it being a spectrum and fear diagnosing even though not all features (according to diagnostic criteria) need to be present to diagnose.  They have no idea about the NICE Guidelines, no idea about the Autism Act/Autism Strategy and no idea about the latest research and knowledge on autism.

    When is it going to get through?  Who is going to take responsibility to educate them?

Children
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