What Were Your Life’s Most Profound Experiences, Good or Bad, as a Person With Autism Spectrum Disorder?

Due to formal-diagnosis unaffordability, at age 56 I still am 'undiagnosed', though that means little to me. It’s a condition with which I greatly struggle(d) while unaware until I was a half-century old that its component dysfunctions had formal names. ...

As a boy with an undiagnosed autism spectrum disorder — not to mention high sensitivity and resultant also-high adverse childhood experience score — my Grade 2 teacher was the first and most formidably abusive authority figure with whom I was terrifyingly trapped.

I cannot recall her abuse in its entirety, but I’ll nevertheless always remember how she had the immoral audacity — and especially the unethical confidence in avoiding any professional repercussions — to blatantly readily aim and fire her knee towards my groin, as I was backed up against the school hall wall.

Luckily, she missed her mark, instead hitting the top of my left leg. Though there were other terrible teachers, for me she was uniquely traumatizing, especially when she wore her dark sunglasses when dealing with me.

But rather than tell anyone about my ordeal with her and consciously feel victimized, I instead felt some misplaced shame: I was a ‘difficult’ boy, therefore she likely perceived me as somehow ‘deserving it’.

I was much too young to perceive how a regular-school environment can become the traumatizer of susceptible children like me; the trusted educator indeed the abuser.

Perhaps not surprising, I feel that school teachers should receive mandatory ASD training. There could also be an inclusion in standard high school curriculum of child-development science that would also teach students about the often-debilitating condition (without being overly complicated).

If nothing else, the curriculum would offer students an idea/clue as to whether they themselves are emotionally/mentally compatible with the immense responsibility and strains of regular, non-ASD-child parenthood.

It would explain to students how, among other aspects of the condition, people with ASD (including those with higher functioning autism) are often deemed willfully ‘difficult’ and socially incongruent, when in fact such behavior is really not a choice.

And how “camouflaging” or “masking,” terms used to describe ASD people pretending to naturally fit into a socially ‘normal’ environment, causes their already high anxiety and depression levels to further increase.

Of course, this exacerbation is reflected in the disproportionately high rate of suicide among ASD people.

As for my own autism-spectrum disordered brain, I’m sometimes told, “But you’re so smart!” To this I immediately agitatedly reply: “But for every ‘gift’ I have, there are a corresponding three or four deficits.” It’s crippling, and on multiple levels!

While low-functioning autism seems to be more recognized and treated, higher-functioning ASD cases are typically left to fend for themselves, except for parents who can finance usually expensive specialized help. … But a physically and mentally sound future should be EVERY child’s fundamental right, especially considering the very troubled world into which they never asked to enter. 

Largely as a result, I’ve suffered enough unrelenting ACE-related hyper-anxiety to have known and enjoyed the euphoric release upon consuming alcohol and/or THC. However, the self-medicating method I utilized during most of my pre-teen years was eating, usually junk food.

My daily lead-ball-and-chain existence consists of a formidable perfect-storm-like combination of ACE trauma, autism spectrum disorder and high sensitivity, the ACE trauma in large part being due to my ASD and high sensitivity.

Thus, it would be very helpful to people like me to have books written about such or similar conditions involving a coexistence of ACE trauma and/or ASD and/or high sensitivity, the latter which seems to have a couple characteristics similar to ASD traits.

Parents
  • it would be very helpful to people like me to have books written about such or similar conditions involving a coexistence of ACE trauma and/or ASD

    From reading this forum for many months now I think it safe to say that almost everyone on the autism spectrum has experiences of ACE (Adverse Childhood Trauma) whether from individual events of an accumulation of events over a sustained period.

    The most common causes are bullying (because we seem different to others it draws bullies like flies), parental treatment (becuase we were "difficult / different" and also in many cases the parent (s) were also autistic), sensory sensitivities or our lack of social awareness leading to us being vulnerable.

    I think almost any book on autism will cover these topics and you will find most of us here carry our own version of your "ball and chain".

    a physically and mentally sound future should be EVERY child’s fundamental right

    I agree, but reality has a lot of catching up to do.

    Your experiences echo many on here so you are in the right place to talk about them. I would suggest using the search option (the magnifying glass on the top right, just to the left of the pink Donate box) to search for posts and get a feel for what is being discussed then chip in with something more specific to start with.

    Which sensitivities are an issue for you? Visual, auditory, touch, smell etc?

  • I’m sensitive to the poster’s use of bold print.

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