two autistic children, and it seems my husband is also autistic- anyone in the same boat? I feel alone

Good Morning all!

I'm feeling pretty overwhelmed and I've no one to talk to. I have two autistic kids and my husband usually leaves me to do everything with them. He works full time and it's a long day for him, when he gets home he just doesn't have the energy or patience to deal with them. I've had hardly a break from them in 7 years, my parents live about 20 mins away and occasionally take them out, or my mum will have one of them for a sleepover (my daughter has sleep issues so wouldn't sleep over). So, while we are grateful for the help we do get, I just don't have the emotional support.

When I've tried to explain to my husband how exhausted I am he just says something blunt and to the point (because he didn't really want to have children in the first place), "Well, you wanted kids. You got what you wanted." From seeing how the kids are and learning about autism, both me and my husband have started to see that my husband is also probably on the spectrum himself. The problem I'm now having is that his anxiety levels are so high sometimes that he can't, rather than won't, be around the children much as they stress him out. He has gone down to a 3 day working week, as his company have had to make people redundant and reduce production. This has really stressed him out, especially seeing as we were already struggling financially largely owing to a shopping addiction he has had almost his entire adult life (but that's another story!) He had a kind of meltdown on Sunday, where a seemingly small thing triggered him and then he was shouting at the children and me, because they had derailed his plans. He had a conversation with his friend all planned out in his head, and because our son was on the brink of a meltdown, I said we had to leave. This tipped him over the edge. He was shouting really bad things like the children should be put up for adoption because we can't cope with them.

It is testing our marriage to the limits, to be honest. I can see it from the point of view of him being on the spectrum, so what he blurts out might be emotionally honest, but he's not intentionally trying to push us away or hurt any of us. It's the fact that in that moment he can't control his emotions, he has always had very intense emotional outbursts, positive and negative. I know that often he can be a very loving husband and father, he's not a horrible person. In fact he is totally loyal, very generous when able to be, and has a great sense of humour. I'm trying to keep in mind all the things I love about him, and what attracted me to him in the first place, because ever since my first pregnancy, he has been really difficult to live with. I'm not trying to paint autism in a bad light, and I know lots of autistic people rightly advocate for fellow autists, but I have to say that my experience of living as a neurotypical with all 3 of my immediate family members, including my spouse, is at times incredibly difficult. And that's with them all being "high-functioning" (forgive me if that term offends). 

Sorry for the long post, please show me love and kindness, I'm not out to have a go at the autistic community! I love my husband and kids as they are, I'm just struggling to get my head around my husband being wired this way. I don't know why, but I suppose if I thought my husband was NT, there would be hope for him to "change his ways" and grow to accept his children as they are. I have to accept that much of the behaviour that I find so difficult is a part of him and he's not able to change it, if that makes sense. I want him to be happy, and at times I feel as though I almost exhausted myself trying to make him happy, only to realise that it wasn't making him happy. In fact, he's only become more and more unhappy. I am worried about his mental health. He won't seek an autism diagnosis, he doesn't think there's much point at his age (54) . He also won't get help for his mental health, I've suggested it a few times but it makes him angry. 

Thanks for reading. 

Parents
  • Hi Loz,

    I found your post so interesting - partly because I and both my two children (now adults) are all autistic (with a diagnosis) and my husband is the only one in our household that doesn’t have a diagnosis of autism. Having said that he does have a few autistic traits - but not as noticeably as me and our children. 
    I am definitely aware that our struggles in life (that are mainly related to autism) have an impact on my husband in both positive and negative ways. So I can relate to what you say even though it’s from ‘the other perspective’. 
    When I’m really stressed out I do sometimes ‘lose it’ and freak out etc - I can feel totally overwhelmed sometimes and I know I’m not easy to be around for my husband when that happens. I feel very guilty afterwards, because he’s a truly wonderful husband who does his best for our family. Both my children have various health issues, and my youngest (who still lives with us - our eldest now has his own place) has really bad OCD. All in all there’s a lot of stress and anxiety that we have to deal with as a family, and sometimes it’s too much for us. The one totally stable thing in it all is that we all love each other so much, and we know that we are all totally on each others side, through good times and bad.

    In your post I see so many positive things. I can see that you are working so hard to be understanding and patient, and to do the right thing by your family. It’s far from easy to support family members with disabilities and/or mental health problems. Being autistic isn’t easy, and supporting autistic people sometimes isn’t easy, no matter how much you love them. Be compassionate to yourself for finding this difficult - because it is difficult! You sound like a really kind, good person. You need to take care of yourself as well as others - you don’t need to blame yourself or feel guilty for wanting help when YOU need help. Whatever his needs your husband is jointly responsible for the children - him being autistic makes no difference to that fact. Presumably he willing went in to the process of deciding to have children?! If he did then they are 50% his responsibility and he needs to do his share of the parenting. It’s perfectly reasonable for you to have boundaries about what you can do, and what you’re willing to do, and when you need help he should be doing his best to help you. Autism doesn’t come in to that - it doesn’t absolve people of their parental responsibilities. 
    I haven’t got time to write more, but if I were in your shoes I’d have a very non confrontational talk with your husband, a supportive and loving conversation where you tell him that you’re struggling and that you need some support yourself. That you need to work together to make things better for your family as a whole, because you ALL have needs, and you all deserve to be happy and supported by each other. Good luck! 

Reply
  • Hi Loz,

    I found your post so interesting - partly because I and both my two children (now adults) are all autistic (with a diagnosis) and my husband is the only one in our household that doesn’t have a diagnosis of autism. Having said that he does have a few autistic traits - but not as noticeably as me and our children. 
    I am definitely aware that our struggles in life (that are mainly related to autism) have an impact on my husband in both positive and negative ways. So I can relate to what you say even though it’s from ‘the other perspective’. 
    When I’m really stressed out I do sometimes ‘lose it’ and freak out etc - I can feel totally overwhelmed sometimes and I know I’m not easy to be around for my husband when that happens. I feel very guilty afterwards, because he’s a truly wonderful husband who does his best for our family. Both my children have various health issues, and my youngest (who still lives with us - our eldest now has his own place) has really bad OCD. All in all there’s a lot of stress and anxiety that we have to deal with as a family, and sometimes it’s too much for us. The one totally stable thing in it all is that we all love each other so much, and we know that we are all totally on each others side, through good times and bad.

    In your post I see so many positive things. I can see that you are working so hard to be understanding and patient, and to do the right thing by your family. It’s far from easy to support family members with disabilities and/or mental health problems. Being autistic isn’t easy, and supporting autistic people sometimes isn’t easy, no matter how much you love them. Be compassionate to yourself for finding this difficult - because it is difficult! You sound like a really kind, good person. You need to take care of yourself as well as others - you don’t need to blame yourself or feel guilty for wanting help when YOU need help. Whatever his needs your husband is jointly responsible for the children - him being autistic makes no difference to that fact. Presumably he willing went in to the process of deciding to have children?! If he did then they are 50% his responsibility and he needs to do his share of the parenting. It’s perfectly reasonable for you to have boundaries about what you can do, and what you’re willing to do, and when you need help he should be doing his best to help you. Autism doesn’t come in to that - it doesn’t absolve people of their parental responsibilities. 
    I haven’t got time to write more, but if I were in your shoes I’d have a very non confrontational talk with your husband, a supportive and loving conversation where you tell him that you’re struggling and that you need some support yourself. That you need to work together to make things better for your family as a whole, because you ALL have needs, and you all deserve to be happy and supported by each other. Good luck! 

Children
  • Hi there,

    Thank you so much for your kind response, I have taken on board what you have said.

    My husband just the other day approached me to say he wants a chat about how he's been and that he wants to change his ways with regards to the kids and helping me etc. so I will hear what he has to say and try to gently suggest ways he can be more understanding towards me and the kids, without getting on at him.

    My problem tends to be a lot of pent up frustration and hurt which could cause me to explode! I am feeling a lot better now, as he seems to have calmed down a bit, for now at least, so I'm not quite as "on edge" with him. 

    My mum also had a chat with me the other day to say she's here for me, as she has noticed i'm not my usual happy self. So that has helped me to feel better too. 

    It is so interesting to hear your story about how autism affects you as a family, and from the "other side", with you also being autistic. Thank you for showing me that the parenting is 50% him and 50% me, regardless of autism. That is something I wholeheartedly agree with, and hope I can help my husband to see. 

    Thanks again for your support,

    take care,

    Loz.