two autistic children, and it seems my husband is also autistic- anyone in the same boat? I feel alone

Good Morning all!

I'm feeling pretty overwhelmed and I've no one to talk to. I have two autistic kids and my husband usually leaves me to do everything with them. He works full time and it's a long day for him, when he gets home he just doesn't have the energy or patience to deal with them. I've had hardly a break from them in 7 years, my parents live about 20 mins away and occasionally take them out, or my mum will have one of them for a sleepover (my daughter has sleep issues so wouldn't sleep over). So, while we are grateful for the help we do get, I just don't have the emotional support.

When I've tried to explain to my husband how exhausted I am he just says something blunt and to the point (because he didn't really want to have children in the first place), "Well, you wanted kids. You got what you wanted." From seeing how the kids are and learning about autism, both me and my husband have started to see that my husband is also probably on the spectrum himself. The problem I'm now having is that his anxiety levels are so high sometimes that he can't, rather than won't, be around the children much as they stress him out. He has gone down to a 3 day working week, as his company have had to make people redundant and reduce production. This has really stressed him out, especially seeing as we were already struggling financially largely owing to a shopping addiction he has had almost his entire adult life (but that's another story!) He had a kind of meltdown on Sunday, where a seemingly small thing triggered him and then he was shouting at the children and me, because they had derailed his plans. He had a conversation with his friend all planned out in his head, and because our son was on the brink of a meltdown, I said we had to leave. This tipped him over the edge. He was shouting really bad things like the children should be put up for adoption because we can't cope with them.

It is testing our marriage to the limits, to be honest. I can see it from the point of view of him being on the spectrum, so what he blurts out might be emotionally honest, but he's not intentionally trying to push us away or hurt any of us. It's the fact that in that moment he can't control his emotions, he has always had very intense emotional outbursts, positive and negative. I know that often he can be a very loving husband and father, he's not a horrible person. In fact he is totally loyal, very generous when able to be, and has a great sense of humour. I'm trying to keep in mind all the things I love about him, and what attracted me to him in the first place, because ever since my first pregnancy, he has been really difficult to live with. I'm not trying to paint autism in a bad light, and I know lots of autistic people rightly advocate for fellow autists, but I have to say that my experience of living as a neurotypical with all 3 of my immediate family members, including my spouse, is at times incredibly difficult. And that's with them all being "high-functioning" (forgive me if that term offends). 

Sorry for the long post, please show me love and kindness, I'm not out to have a go at the autistic community! I love my husband and kids as they are, I'm just struggling to get my head around my husband being wired this way. I don't know why, but I suppose if I thought my husband was NT, there would be hope for him to "change his ways" and grow to accept his children as they are. I have to accept that much of the behaviour that I find so difficult is a part of him and he's not able to change it, if that makes sense. I want him to be happy, and at times I feel as though I almost exhausted myself trying to make him happy, only to realise that it wasn't making him happy. In fact, he's only become more and more unhappy. I am worried about his mental health. He won't seek an autism diagnosis, he doesn't think there's much point at his age (54) . He also won't get help for his mental health, I've suggested it a few times but it makes him angry. 

Thanks for reading. 

Parents
  • It sounds like a chain effect where his stress doesn't just stay with him at a managable level and is spilling over onto you too. Can your husband try some self therapy techniques to help manage the stress and keep his energy levels up? That way he may have more spoons to help out with the kids. The self therapy is just stuff you tailor to yourself from tips from the internet in leu of seeing a therapist, I used to do it as a stop gap between therapists and it worked well for me at least. Try look up "Autistic self care" and see if anything useful he can use pops up.

    I feel you with the not having a break btw, I haven't had a single day away from my kiddo in 4 years now. But between you and me (I'm autistic) I think if you are an autistic parent (and know you are) to an autistic child it is oddly easier (not easy, just easier, like my son has never had a meltdown at home because his cope-ablity is so actively managed here, unlike at school) because you often know what you are looking at with their behaviours, so know more or less what to do. At leat that has been my experience. I used to struggle not getting a day off, but tbh now I hold onto the days we can spend together as once teh teen years hit there's every chance his being my little buddy will come to an ened and he'll want to just go off and do his own things.

    Anyway sorry to hear you are having a tough time, I hope you are taking the time for some self care yourself too.

Reply
  • It sounds like a chain effect where his stress doesn't just stay with him at a managable level and is spilling over onto you too. Can your husband try some self therapy techniques to help manage the stress and keep his energy levels up? That way he may have more spoons to help out with the kids. The self therapy is just stuff you tailor to yourself from tips from the internet in leu of seeing a therapist, I used to do it as a stop gap between therapists and it worked well for me at least. Try look up "Autistic self care" and see if anything useful he can use pops up.

    I feel you with the not having a break btw, I haven't had a single day away from my kiddo in 4 years now. But between you and me (I'm autistic) I think if you are an autistic parent (and know you are) to an autistic child it is oddly easier (not easy, just easier, like my son has never had a meltdown at home because his cope-ablity is so actively managed here, unlike at school) because you often know what you are looking at with their behaviours, so know more or less what to do. At leat that has been my experience. I used to struggle not getting a day off, but tbh now I hold onto the days we can spend together as once teh teen years hit there's every chance his being my little buddy will come to an ened and he'll want to just go off and do his own things.

    Anyway sorry to hear you are having a tough time, I hope you are taking the time for some self care yourself too.

Children