Does Aspergers get worse? (Intenseworld, your input would be great)

Hi, we are on the road to a diagnosis for my daughter (9).  Since we came to the conclusion she may have Aspergers she has been a lot happier in herself and says that she's glad that she knows why she is different and that other people know why she's different.

But.....her 'autistic traits' seems to be getting worse.  I don't know if it's because she feels able to talk about the things now, that she doesn't feel 'silly' for telling me things that bother her. She seems less able to cope in busy shops, when it's noisy at school and things like that. She told me that when she's stressed she feels she wants to hide her face 'somewhere dark' like in a cushion or blanket, or if it's somewhere noisy she wants to run away and hide.

She also says that she's worried about 'everything', when I try to find out what she actually worried about I can't get much out of her.  One of the things she has said that she's worried about burglars coming in at night!

It's horrible as a parent to see her struggling so much, I'm also worried that if things carry on escalating she's going to really struggle by the time she gets to senior school.

Parents
  • I'm just appealing the LAs refusal to assess for statement as we speak.

    She's on SA+ but she is still not coping.

    We had a 4 hours meltdown from her last night.

    Her school has a specialist unit but she needs a statement to get into it, which is why I'm working towards getting one (fingers crossed).

    That's good that your daughter will feel like it's not so different when she moves into secondary school with it being so nearby.

Reply
  • I'm just appealing the LAs refusal to assess for statement as we speak.

    She's on SA+ but she is still not coping.

    We had a 4 hours meltdown from her last night.

    Her school has a specialist unit but she needs a statement to get into it, which is why I'm working towards getting one (fingers crossed).

    That's good that your daughter will feel like it's not so different when she moves into secondary school with it being so nearby.

Children
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