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Applying for a statement for high functioning asd - help!!

Mum25
Hello everybody I'm in the process of compiling my letter to the LA to ask for an assessment on my 10 year old lad. He is higher functioning so his grades aren't way down, my problems lie mainly in his communication and behaviour. He is so easily led, for example he jumped off a building within the school grounds 14 times because some children told him to, he angers at others so easily, headlocks tries to the strangle them etc but manages to "hide" his behaviours from his teachers and letting rip at home instead. I do have schools backing on asking for an assessment but have been told they feel its unlikely because hes a bright boy. Could anybody give me some wisdom on what sort of information to put into this letter or general advise please? I feel so sad that everybody tells me he won't get a statement because he's not failing in his actual progress, why should he not get the support because he masks things and then meltdowns at home instead :( Thanks so much mum25
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  • Hello all

    Firstly, please let me apologise for the fact I haven't been on the community for an eon or so it feels, life y'know!

    I want to update you all and thank you for all your replies.

    The upside is, we decided to appeal the note in lieu, just before Christmas (no stress involved there then!!) and we heard a couple of weeks ago, that the LA agreed to statement   After the appeal went in, we decided to get our son some OT help as the waiting list was huge (and we have since found out that our local area are no longer taking on new referrals) we decided to go private, which was the best money spent, his OT is fantastic.

    We have had the proposed statement, and it fell far short of the way we see our son's needs, so I went through his appendices thoroughly, and showed the LA that it wasn't an accurate description, and asked for more provision to be provided.  Most of it has been agreed, apart from, yes you guessed it the OT, which she recommends we carry on seeing her monthly in clinic (£110 per month) and follow the exercises daily, our son is making progress already with this.  The other thing she recommended was a laptop as he is hypermobile and his joints are literally collapsing when he tries to write, and therefore leading to dislocation, pain and a reduction in writing.  The LA have also said that they will not provide this.

    So, my question is are they obliged to pay for the laptop and OT clinic treatment if it is recommended and carried out by a private OT?  All the other recommendations made by her have been agreed, her appendice is listed on the front page of the ammended statement, and they've agreed to add all the OT needs in part 2, but not the provision in part 3.

    For all those who are still fighting, keep at it, it can be done, his emotional needs have finally been recognised 

    Mum25

Reply

  • Hello all

    Firstly, please let me apologise for the fact I haven't been on the community for an eon or so it feels, life y'know!

    I want to update you all and thank you for all your replies.

    The upside is, we decided to appeal the note in lieu, just before Christmas (no stress involved there then!!) and we heard a couple of weeks ago, that the LA agreed to statement   After the appeal went in, we decided to get our son some OT help as the waiting list was huge (and we have since found out that our local area are no longer taking on new referrals) we decided to go private, which was the best money spent, his OT is fantastic.

    We have had the proposed statement, and it fell far short of the way we see our son's needs, so I went through his appendices thoroughly, and showed the LA that it wasn't an accurate description, and asked for more provision to be provided.  Most of it has been agreed, apart from, yes you guessed it the OT, which she recommends we carry on seeing her monthly in clinic (£110 per month) and follow the exercises daily, our son is making progress already with this.  The other thing she recommended was a laptop as he is hypermobile and his joints are literally collapsing when he tries to write, and therefore leading to dislocation, pain and a reduction in writing.  The LA have also said that they will not provide this.

    So, my question is are they obliged to pay for the laptop and OT clinic treatment if it is recommended and carried out by a private OT?  All the other recommendations made by her have been agreed, her appendice is listed on the front page of the ammended statement, and they've agreed to add all the OT needs in part 2, but not the provision in part 3.

    For all those who are still fighting, keep at it, it can be done, his emotional needs have finally been recognised 

    Mum25

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